Death Panels...Since when is one's life "not budgetable"?

Arizona has a Governor without a heart or a soul. Her state's budget cuts are not only "saving" money, but are also COSTING lives.

Now, two people are dead. Thanks to the budget cuts and the insurance's refusal (due to said cuts) to pay for much-needed transplants.

There's now a list of people in the state of Arizona whom will surely die, being that their assurance of insurance has been cut off because the insurer will not "be able" to pay for the transplants.

Including the one this past week who was needing a kidney transplant.

Yes, the insurance I am speaking of is Government-funded Medicaid. The state's funds for the insurance that helps those that are low-income, too disabled to work or meet other criteria for the (supplemental) insurance will be cut by $1.2 million.

Luckily though, the citizens of Arizona have Senate Minority Leader-Elect David Schapira (Democrat) in their corner. And he is asking to have *emergency* restoration of the Medicaid funds to be put in to place. But only for certain types of transplants.

Thus far, 98 patients are on that list.

Patient Mark Price died in November, as he was desperately awaiting a bone marrow transplant.

Read the full story at... CNN.com

As a transplant recipient myself, to see these kinds of cuts made at the expense of human life, is utterly deplorable. Shame on the state of Arizona, and it's idiot Governor, Janet Brewer.

Rest assured though, that in the event that herself or one of family members or close friends (who were on Medicaid, thanks to job loss or lower income status) suddenly required a transplant of some type, she would be fighting tooth and nail to get their insurance to pay for it.

But hey, it's no one special or important (to the dumb hag called 'Governor') so she feels that she can go to lay her head down at night without the guilt of knowing that she (literally) signed almost one hundred of her citizen's death warrants by her actions of slashing the access to their medical insurance, and to much-needed medical care to stay alive.

Sure, it was "just an eye" to most people. But saving my sight, as well as my entire eye was of utmost importance to me as a mother of three children who are all still under the age of twelve.

If my insurance wasn't there to help cover the cost of my (**$23,000.00**) surgery to have my cornea replaced with a cadaver's cornea, then I would not have my sight, let alone the eye its self. And being a mother, it would have hindered (somewhat) my being the mother I am to my children.

What kind of person wishes to slash funding as to let others be there with their children and grandchildren? A thoughtless Government Official such as Governor Janet Brewer, is who! And the scary part in all of this? If one state does something like this to "save the state money", then most often times, even more states follow and institute these cuts as well.

And that's a scary thought in its self! It will go from just under a hundred, to hundreds, then to thousands. Then, quite possibly the "movement" could cost MILLIONS of lives here in America.

Is this really what our country's Government was built to be all about? Money over it's people.

The more I look, the more I view it in this manner. And it frightens me more and more a bit each and every day, that our children and grandchildren's lives will be placed on the front lines as a means to save a few extra bucks for the Government Officials to pocket.

The money NEEDS to be put back in place. At least some it it, anyways. And for the most needful of transplants (heart, lung, kidney). And Arizona's guidelines on insuring transplants needs to be overhauled as well. No one's life is above another's. Or at least it shouldn't be.

I can understand (at this time) that they cannot cover ALL types of transplants. But give those with the biggest fights ahead, the biggest chance at living.

Is this really too much to ask, Gov. Janet Brewer?

Special Needs, Special Education, Aides, And Stuff.

As the mother of a Special Needs child that is NOT Neurotypical, I love to educate others (the public at large) on what it's like as a parent, but also for our kids, that have a SILENT Disability.

What is a Silent Disability you ask? Well, to put it in layman's terms, it means that someone has a disability, or a combination of different disabilities that does NOT outwardly show in physical appearance. They may walk and talk just fine. But on he INSIDE, it is a completely different story. The person may have Lupus or Fibromyalgia. Or they have Bipolar or Oppositional Defiance Disorder. And there are MANY upon many other ailments, malady's and illness that seem to not appear to be noticed on the outside of the body.

My son has several mental disorders. They impede and impact his daily living and social skills. And also his eating and sleeping habits. He has very few friends. He has a very difficult time with outward, verbal expression. He has emotional set backs, as well as a decreased maturity level (that is NOT within 'normal' range for a boy his age). For the most part, he looks, walks, and talks just like you and I. But when he displays his "quirks" and has manic episodes, and angers so badly that the devil looks like an angel, then you know something is seriously off with my boy.

Have you ever gotten upset at ANY person that parks in the Handicapped Parking space, only to see them get out and walk in to the store, minus a cane, walker, or scooter. And even without an oxygen tank? Are you more upset that they took that spot from a REAL disabled person? Or that they walk and act "just fine"? Maybe for you, it's both?

I've honestly lost count of how many stares my mother-in-law and I have gotten as we step out the van and WALK to the store's entrance from her handicapped parking space. She is disabled and cannot stay in the store and walk for too long. And she has a hard time breathing, but not needing oxygen (yet). She has Systemic Lupus, a colostomy bag and she tires easily due to the Lupus. But you cannot see that from just looking at her.

Now, back to children with Special Needs (of any kind, really). I was reading on my local news station's web page that a near-by county is CUTTING Behavioral Aides from their schools. Why? They suddenly became a part of the county's budget cuts.

http://www.wset.com/news/stories/0610/746253.html?ref=tw

Those that work with kids like mine are an integral part of those student's having the ability, focus and willingness to learn, and learn effectively. To take them away from those kids (as was said in the article) for even just ONE school year, can set those kids (potentially) back for SEVERAL years to come.

I'm sorry, but no basic Teacher's Aide will be able to 'effectively' assist those children in the manner that they need the help to be within the mainstream classroom setting. Not unless they too have children that have some type of mental/behavioral disability/disorder.

Even then, for as long as I have been dealing with and learning the ropes with my own child, it does NOT make me an "expert" in the field of Childhood Neurological Behavioral Sciences. I'm just a MOM that has a lot of personal experience and literature-based knowledge of what is wrong with MY child.

Many, if not MOST of those children have SSI Disability, as well as Medicaid Insurance. If need be, the kids can still have their Aides (those that will require the most one-on-one assistance), and Medicaid can pick up the bills. All they will need is a Pre-Authorization from their Specialist. Ninety-nine percent of the time, Pre-Auth's are APPROVED.

In the end, it's truly a win-win situation. No money out of the school's pocket (or the children's parents). And the kids get the Aides that they desperately need in order to receive the best education possible for their abilities (and disabilities).

Honestly, this is a 'no-brainer'....

My Shining Star (My Son)

Well, yet another chapter has been written for my child. Another diagnosis. Another medication. And I'm okay with it. We know what it is, what it's caused by and how long he could have the problem.

Finally, after almost a month of fighting and nipping the heels of the doctor's office staff manager, the insurance company and making some complaints filed, it happened. Bryce FINALLY got his prescription for the Intuniv approved to be covered by his insurance carrier. That's one less thing to worry about.

As for his oral tics, they have gotten worse. And we noted that they picked up more after the Intuniv was started. Although, we pinpointed that it is NOT the medication causing them. But the medications (one, two, or possibly all three) are bringing them out more than they would usually show.

Bryce has now been diagnosed with Tardive Diskinesia. Basically, his tics are a neurological disorder consisting of abnormal, involuntary body movements caused by certain medicines. It is usually associated with long-term use of medicines for treating schizophrenia and other psychotic disorders. And this disorder will most likely NEVER go away. He has a strong possibility of always having tics to some degree for the rest of his life. And some bouts can and do affect his day-to-day living.

By what we have seen, as early as infancy, he has always had a very mild case of tics. But since starting certain medicines (primarily the Seroquel and the Intuniv that was just added), the tics have become more prominent and vary in degree of progression and regression. They have once again gotten not only in to his mouth region, but also in his hands and feet. Even his eyebrows are getting the tics.

We as his parents, have seen great improvement in everything thanks to the Intuniv being added. He isn't as aggressive, or volatile. He has a better time focusing and being organized. Even his teachers had stated how improved he had been (they did NOT know I placed him on the Intuniv for the first 2 or so weeks). They said he was like day and night with the (positive) changes.

Of course, those changes came with a price. But it's one that all of us (myself, my husband Scott, and Bryce himself) are willing to pay. And that is the severe increase in the tic disorder. I'm calling him my Jumping Jellybean. 

My son, no matter his outward appearance is still a NORMAL, active, (for the most part) healthy boy. He just has A LOT of twitches. And yes, it can impact his speech and verbalizing things he wants to say. It takes him a bit longer to get his sentences out. Patience is the key. For both of us.

In fact, this year, Bryce (for the first time) is taking the Standards Of Learning Tests (math, reading, science, social studies). He has a "Test-Taking Buddy", where he goes off to the teacher's room that does Title-One reading to do his testing. He finds it better to be alone so he can talk-think his answers, doesn't feel as pressured to perform well, and isn't on a time limit (being he is disabled, those are his afforded rights as a disabled student). His scores will come in the mail with his final report card of the 2009-2010 school year.

He may not "look" normal, but he isn't your "average" kid either. He may be at about a 4 to 6-year-old mental-maturity level, but he has been deemed (like his older sister) to be Academically Gifted. He can do work from normal grade (3rd) range, up to 6th-grade-level, based on the subject.

I'm proud of all three of my kids. They are all my shining stars in one way or another. But Bryce's star shines just a tad brighter. He has endured one struggle after another in stride, and with pride. And he has (in his own unique way) shown this old mama just how strong and how far she will go to see that my kids are NEVER 'left behind'. And for that, I will forever be in his debt and he will always have my gratitude.

*COPY* Of My NEWEST letter to the Gov. of Virgina

April 20, 2010

Dear Gov. McDonnell,

Once before, I had written to you personally to ask that you help me, my son, our family and other families like ours in the fight to place Vyvanse back on the Medicaid's list of available options to treat mental disorders (written on Feb. 5th, 2010). I had received a "round about" reply, and to be honest, it hurt me, thinking that maybe you didn't really care as to what your Virginia Citizens had to say.

But, just a moment ago, I had read an article, via the Roanoke Times (http://www.roanoke.com/news/roanoke/wb/243974)  that indeed you wish to fight FOR our families, not against us. And for that I do thank you.

I can only hope that you, sir took my words in to consideration as to your decision to fight for medications to help treat mental illnesses and disorders placed on (or back on) to Medicaid's Preferred Drug/Drug Availability/Coverage List.

Now, I am begging, not just asking, Mr. Governor, that you take this fight all the way. Do NOT stop. To stop is to fail. Not only yourself or this state. But you would be failing my son and countless other children that require Drug Therapy to help them lead a more "normal" life outside of their mental illness/disorder/disability.

I'm not scared to go up against "professionals" who feel that withholding services from my son is alright. I would take on the Government if I had to myself. My life has been too much filled with adversity from the start for me to back down now. Not for myself. Not for my children.

Please, Mr. McDonnell, give our children the best chance at a good life. Make it easier for me, and other parents to be able to go to the Pharmacy without having to fight for THREE WEEKS between them and Medicaid just to get our children's medicine. No child should have to go that length of time WITHOUT their medication because insurance decided it is in THEIR best interest to no longer cover that medication in their Drug Coverage Plan for it's consumers.

I've now got a renewed faith in you, Governor McDonnell. Please know that I will back you 100%. But I want to see you do your part. I know that you received much flack from us parents (primarily mothers) for letting Medicaid take advantage and in the end, disadvantage our children. I can only hope that WE were your driving force for going up against Medicaid.

Keep fighting the good fight, Mr. Governor. And thank you, from a mom with a very special little guy.

Sincerely,

Melissa A. Cowart (Lynchburg, Virginia)

Arm, eye and stomach...What a combination to deal with.

Germ invasion, broken arm and a failing eye. That is what I have been dealing with since last week. Let's just say it's kind of looking up.

The bright side? Bryce's arm and hand/finger swelling is going down and he is doing well in the cast.

Otherwise, there isn't much of a bright side. Other than the fact that the constant drops in the eye are helping to reverse possible irreversable damage to my Cornea.

After sitting in the Cornea Specialist's chair, he looked in to my eye and looked at results from a new test I had done last Friday. Then asked how long my eye has been red.

Come to find out...My Cornea is in the EARLY stages of Rejection. Not even in my fourth month yet and BOOM! Now I'm on my Pred Forte Drops several times a day. At least for the next three weeks.

Then, Friday night, Skyler got us up at around eleven from a nice slumber, only to let Scott and I know as she cried that she "puked" all over my living room carpet and couch. Let's just say, it is going to still require the Rug Shampooer to get the stains up.

Top it all off with last night, around midnight, Bryce got up and barely made it to the toilet and threw up. He also had some on the doorway area of his carpet. But otherwise, he did it full throttle all over the seat, inside, and the side of the potty.

At this point with my immune system already attacking my eye and having a lowered "defense", I can't afford to get sick. That would make my already failing eye a complete failure most likely. My body is already attacking the Cornea. To get sick leaves a wide-open shot like a dear being hunted in the clearing of the forest. It's sure to be killed.

One day soon, I will be able to hopefully put all of my worries behind me with my eye. But now that is is in rejection, my chances go up for it to happen again if I can save THIS Cornea.

Well, that's life. I have YET to be able to get Bryce's Vyvanse. Still working on fighting insurance and waiting to see if the Pre-Authorization went through. Plus, Bryce has an appointment Friday for his broken arm. Needless to say, Dr. Asshat who doesn't call back never let him get an earlier appointment so he won't miss TWO WEEKS of school. So, it looks like Monday of NEXT week is when he can go back. Bryce NEEDS TO BE IN SCHOOL! Not stuck at home...for a broken arm. Good lord!

This guy makes me wonder if he is a quack. Who the hell keeps a kid home for two weeks? Put Bryce in a sling, make sure he gets assistance from the other kids and the teacher to help write and carry heavy things and take extra precautions (like no P.E. or recess on the school yard).