Yes, Virginia, words *CAN* hurt.

Words. They are probably the most powerful tool that we possess as human beings. They can be used to encourage, relate with and help in the healing process. They can also cut like a knife, aggravate and maim another to their very core.

Some words, while spelled the same, can have two very differential meanings. Take the word "ship". One is a boat that floats on the water, carrying people abroad from one piece of land to another. The other "ship" means to carry items from one location to another for people through a mailing service.

But the word that we will be focusing on that has become ever so quite popular to use in various context is "retard/retarded".

From Dictionary Reference ...

"re·tard·ed"

[ri-tahr-did]

–adjective

1.characterized by retardation: a retarded child.
–noun

2.( used with a plural verb ) mentally retarded persons collectively (usually prec. by the ): new schools for the retarded.

Origin:
1800–10; retard + -ed2

—Related forms
non·re·tard·ed, adjective
un·re·tard·ed, adjective

—Synonyms
backward, disabled, handicapped.

"re·tard"

[ri-tahrd, for 1–3, 5; ree-tahrd for 4]

–verb (used with object)
1.to make slow; delay the development or progress of (an action, process, etc.); hinder or impede.

–verb (used without object)
2.to be delayed.

–noun
3.a slowing down, diminution, or hindrance, as in a machine.

4.Slang: Disparaging .

a.a mentally retarded person.

b.a person who is stupid, obtuse, or ineffective in some way: a hopeless social retard.

5.Automotive, Machinery . an adjustment made in the setting of the distributor of an internal-combustion engine so that the spark for ignition in each cylinder is generated later in the cycle.

[End of definitions]

Now, in all the years that I have gone with my father, my husband or on my own to the Mechanic to get my vehicle checked have I ever heard the word "retarded" come out of their mouths to describe the setting of my car's distributor.

I have though, heard of those with mentally debilitating handicaps being referred to as being "retarded" or being a "retard". Both by the medical community, and through society's "common man". And honestly, I literally cringe when I hear those words. No matter their context.

My daughter has a friend who's younger sister is severely handicapped. She cannot walk. She cannot talk. She cannot eat normally like you and I do. But she is sharp. She can bounce around her home with ease upon her knees. She can speak through a "voice box" communications computer, or uses sign language. And she must eat through a bottle, seeing as her "food" has to be in almost a completely liquid consistency.

She has Cerebral Palsy. She is what people would call "retarded". But after you see all that she CAN do, she can place most of us "normal" people to shame. My children play with her at school and within their home. She and I have fun talking and she is ALWAYS giving me hugs and when she sees me in passing at school, the biggest smile comes to her face and she is about to bounce out of her wheelchair to get to me and wants to high-five me.

My biggest pet peeve though, with the words "retard" and "retarded" is when they are used in a non-medical, derogatory manner. Saying to someone, "You are such a retard!" is not only insulting towards the person you are referring to, but to those that REALLY DO have mentally challenging handicaps.

And when you say, "That's retarded.", you are insinuating that something is "slow, stupid, obtuse or ineffective". But listen to yourself as you say it. It's on the same level as stating "That is so gay!". So something is having a relationship with it's own kind? That made no sense. And it insults those in your community that ARE in fact, Gay.

How would people like to hear something along the lines of "It's so nigger."? Sounds great, doesn't it? *insert eye roll here*

Or how about "Stop being such a Jew!"?

My son has several mental disorders that have in the end, deemed him disabled by the state and by the Federal Government. He is NOT stupid, slow, defective, a socially inept being, or a hindrance. He is my son, who is bright-minded with some quirks. He is disabled emotionally, socially, maturely and mentally (to an extent).

What are his disorders, you ask (for those that are new to my blog, or just don't know)? He has ADHD, OCD, ODD, Mood Disorder (basically, he has Bipolar, but due to age, is Dx'd with the Mood Disorder until later in age), and Asperger's Syndrome 'tendencies' (he does not have full-blown Asperger's, but is borderline).

He can be violent, abusive and easily short tempered. He cannot handle change well (especially sudden or massive changes at one time). He has Manic-type mood swings with outward evidences of 'highs' and 'lows' (extreme hyperness or extreme sadness) at any given moment of each day.

But on the flip side, my child is one of the most loving, caring, affectionate, brightest children you would ever meet. With even his bad days, it's hard to NOT love him or want to do your best by him. No matter the cost.

The one thing my son is *NOT* is "retarded". By ANY meaning of the word. I certainly would NEVER let a medical professional refer to him as being such, let alone anyone within "general society". He is handicapped or "challenged". Nothing more. Nothing less.

So, before you (generalizing the word 'you', not pointing fingers to any specific person) go and state that someone is a "retard" for any reason, or say that something is "retarded", think BEFORE you speak those words from your lips. Because once you say them, you can NEVER take them back.

Even those within the medical community have started the change from using the words "retard" and "retarded", seeing the hurt and anguish those two 'simple' words bring to those that ARE affected by mental and physical disabilities, as well as their families and friends.

That alone should tell you something. That wording and context are EVERYTHING. So yes, while sticks and stones may break bones, names (and misuse of words) *CAN* hurt. Especially those that know of someone, or they themselves are personally affected with being handicapped.

Please if you wish to help stop the spreading of the "R-Word" in it's wrong verbiage, join me at...




I have taken the pledge. Will you?


Also, while I am NO fan of severe Right-Wing Conservatism, nor am I NOWHERE near a 'fan' of Sarah Palin, I WILL agree with her anger and I WILL side with Palin in regards to Rush Limbaugh's uses of "retard" and "retarded". Even as he referred to those that REALLY ARE cognitively and developmentally disabled persons.





Don't even get me started on Ann Coulter...

Daydreaming, ADHD & Team Building

It's been a strange start to the week. Monday wasn't too bad as far as Monday's go. Tuesday was Election Day for Mid-Terms. I even voted for Tazmanian Devil to get City Court Clerk. Instead some idiot I have no clue about got the spot. I think Taz would have done a fine job myself. And last night was also the monthly appointment for Bryce, my Special Needs child.

It's becoming increasingly apparent that the medications that he is on for the ADHD are helping. But not to the extent that we would care to see. He is on the maximum dose of Vyvanse. And we are upping his Intuniv to three mgs. to see if that may help a bit more.

But also, the teachers MUST be willing to work more with him. And with us. In a COMPLETE team effort. They have yet to realize that NOT EVERYTHING he does is within HIS control. A lot of it has to do with the ADHD and its severity taking control and causing him to wander, be completely distracted, blurting out, cutting in to conversations or instruction. He even said one of the teachers mainly lectures for the entire time, every single day. An ADHD kid CANNOT handle more than five to ten minute increments of "lecturing".

These people are expecting him to pull off the impossible. To stay on task, focus completely and listen 100% of the time, during the entire day. While us "normal" people CAN do that, a child with severe ADHD cannot. They do not have the control over their brains to obtain such feats.

Even the doctor had agreed with me when I stated that basically my child is in a constant daydream. His brain NEVER slows down enough to tackle one specific thing at a time. His mind is a jumbled mess twenty-four hours a day, unless people are willing to re-direct him, work with him and help ensure that he is keeping on track with the task at hand.

For the last several years, myself and Bryce's Case Manager have hit one stumbling block after another. Even though Bryce is listed BY THE STATE, as well as by FEDERAL GOVERNMENT (seeing as he DOES collect SSDI) as being "disabled", my child has been turned down time and time again for in-school services. This means he cannot get an IEP, a 504 Plan, most accommodations. Why? Because he is SO damn smart and "making the grade", that his disability isn't "showing" enough through his grades to "mandate needs" for Specialized Services through the school system.

Excuse me??? So in a nut shell, they are stating that being my child does not have a severe intellectual impediment, he isn't deaf or blind, can walk and talk just like any other "normal" person, that he does NOT qualify for a damn thing, seeing as he DOES have behavioral issues that severely impact social skills and daily living skills. Just getting him to do a five minute task can take easily twenty minutes or more.

At school, about three weeks ago, he was SUPPOSED TO go to the bathroom that sits kitty-corner from the classroom. But about ten minutes later, he was found to be down the hall at the Second Grade area, just standing there, watching in to one of the classrooms. And he honestly cannot say why, or how he "got there".

He is ALWAYS "forgetting" his FINISHED homework. No matter how much I have tried, the boy is incessantly disorganized with his binder.

All he does is get in to trouble in school for wandering the room, not staying on task, speaking out of turn, bugging the other students in class, not following (multiple) directions (which is EXTREMELY hard for Bryce to accomplish), wandering the halls and being a "behavioral nuisance".

Now, someone PLEASE DO tell me, how are these "problems" that the teachers are always complaining of NOT being addressed in their correct manner? As in, with Specialized Services being readily available and in use with and for my child? How bad does it honestly have to get with his behavior and "daydreaming" for them to FINALLY take a hard look and actually GIVE HIM the services Bryce is RIGHTFULLY due?

Honestly, sometimes Public Education amazes me. And *not* in a good way, mind you. So, if I seem angry in this post, and in general, you can bet your ass I am! I'm tired of the run-arounds, the blind-eyes and the refusal to HELP my child live up to his full potential and get the best educational opportunity available.

I Watched Someone Die Not Once, But Twice!

Today is World Alzheimer's Day. Do you know of someone that has been touched by this awful disease? Or, are you yourself inflicted with it?

My grandmother (Nana) had Alzheimer's. It started off slowly when I was still living in Nevada. Actually, I take that back. I strongly believe for her, it started while we were all still living in California, where I was born and primarily raised.

At first, it was very subtle. Nana would place something down in a pretty conspicuous place, where anyone with pretty good eyes (and back then, they were pretty good for her) could clearly see the object in question. Only, minutes later, she would get up and do whatever, only to search long and hard for what she "misplaced" moments earlier. When one of us (being myself, my dad, or my step-mom) would find it sitting practically in front of our face, we all would just laugh it off and chalk it up to Nana having a "blond moment".

But as time wore on, and after we moved to Nevada, things with Nana's memory was getting worse. And worrisome. She had gotten to a point where she could tell you about her childhood and teen years, but could not recite to you what she ate for dinner the night before.

Eventually, long after my dad and step-mother divorced, Nana's Alzheimer's really took a hold of her, along with the other factoring health problems (such as her COPD and her Emphysema). At this point, my father's own health was starting to rapidly decline, due mainly to the stress of being his mother's primary caregiver. Even with outside resources stepping in to help with her care...

Eventually, there was no other choice. And it was primarily for my father's health and sanity, that Nana was placed in to a Nursing Care Facility. Not too long after her transfer to the home, her mental status declined dramatically.

No longer could she tell you what she ate just a couple of hours before, for dinner or any other meal. Now, my father became my uncle. Because whenever my dad went in (almost daily) to see her, Nana thought that he was her oldest son, not my father. That really tore him apart inside. No longer was he the son that was REALLY there, and that was her main caretaker.

About a year or so after her entrance in to the Nursing Home, and at the point where that God-awful disease, Alzheimer's robbed my grandmother of her mental faculties completely, I got the call that I was dreading for the last couple of years. The day before her birthday, no less.

That next VERY early morning, I hopped on the first of THREE planes (stupid layovers!) to get to her, hopefully in time. She was in the hospital, her organs shutting down. Her mind now ravaged savagely by the Alzheimer's. They gave her (at best) 24 hours. It was then about the 23 to 25 hour mark when I got in to Reno, and hence to the hospital with my dad.

Somewhere in between his waiting for me at the airport and us getting to the hospital, Nana apparently suffered a Stroke. Her Hernia that she developed made her look AT LEAST seven months pregnant.

At one point, I had to leave the room. I could no longer take seeing her in that condition. For me, that was NOT *my* grandmother. That was *not* the same woman, by looking at her, that helped to raise me the rest of the way after my mother's death in 1989. So, as calmly as I could, I told her I would be back in a bit, as to let her rest.

For a brief moment in time, she had a twinge of clarity within her ravaged mind. Which of course, by then was moments that were far and few in between. She started mumbling and her hands started to go erratic. She was (in the only way she could, being she couldn't speak due to the stroke) trying to tell me not to leave her. She was getting so upset, I told her (through yelling, being the stroke damaged the nerves in her ears) I'd be back. She calmed a bit, but not much..Finally I had to leave. I almost got sick all over the ward's floor from seeing what I did. It was horrific..

Before that point, all she did was breath and stare at the ceiling without literally batting an eyelash. That alone brought me back to being 12-years-old and seeing my mother in pretty much the same condition after her stroke. For me, history was repeating it's self and rearing its ugly head before my very eyes.

The next day, we went back. She made it through her birthday. But later that next evening, something inside me said to NOT go and see her when they transferred her back to the Nursing Home. To die.

Not even an hour after I had changed my mind, we got *THE* call. She was gone. Free now, from the pain that she had to endure at the end. And finally, Alzheimer's Disease no longer had it's horrible grip upon her mind. She was free.

A few years later, my father and I were talking about Nana. He finally admitted something to me. Years before, when Hayley and Bryce were 2 years and 3 months of age, it was the ONLY time that she (Nana) was able to see, touch and hold her great-grand-babies. I'm so happy she was. And he even posted a family picture of us on her Nursing Home room's wall.

It came out in this conversation with Dad, that about a month before she passed away, Nana had forgotten who I was. She would look at the picture and without missing a beat, would ask my father who it was (the young lady) in the picture that was on her wall. Then she would ask about my (now) husband, Scott and the kids.

To hear that she no longer remembered the woman whom she helped raise tore me apart inside. It made me angry. Not at her, but at the disease. It made me resentful. Why me? Why did that nasty disease have to rob me of her, and in turn, her of me?

It's truly sickening to watch and know of someone you love, and that (more than likely) took care of you, just waste away to practically nothing. It is a disease I don't care to wish upon my worst enemy.

For me and my father, we didn't lose our mother and grandmother just once in our lives. We had to endure losing her twice. The first time, she was 'dead', but still breathing. And that is the worst kind of death, in my mind, to see someone you love go through.

If you wish to know more about Alzheimer's disease and it's history of origin, please CLICK HERE.

ADHD...

As a mother, it is hard to watch your child struggle. What are ordinary, everyday tasks and expectations to us, is a ball of confusion and frustration for our kids.

Sitting still. Focusing. Being organized. Paying attention to the instructor. Following multiple directions at a rapid pace.

Sounds like a lot, and even a bit confusing to you? I'm sure that it does. But to my son, and to millions of other children in the United States alone, it is a hardship for them every single day to keep up with those tasks while in the classroom, and even at home.

Constantly, I have to remind my hyper, active, not-very-attentive son to complete this task first, so he can move on to the next. Then, after that, I have to remind him to let me check his work against his Agenda, to ensure that he completed the assignments. Then, and only then, may he have his computer or his TV time.

The same goes for his household chores. And the teachers have to stay on top of Bryce as well, being he can fall off of the track pretty quick, and pretty often.

Case in point.. Bryce was found to be sitting in the hall, by his Science and Social Studies Teacher's room. Apparently, he was disrupting the class and "poking at" one girl constantly. After being told to finally move himself to an area where he could be alone, he started to bawl and be belligerent. So, the teacher sent him to the hall.

Then, at snack time, when the Mixed Berries were passed out, he couldn't have any, being that the kitchen never made him a separate bowl without the Blackberries, being he is allergic to them. He went buck wild, pitching a fit, not concentrating on the teacher's explanation, and saying he was being abused because she was "starving" him.

It's not ALL stemming from his ADHD. The lashing out is from another disorder he is inflicted with. But the "poking" of the child, his fidgeting, his lack of concentration, and organization skills, as well as his hyperness, even in his talking to others is a part of the ADHD that he has. Bryce has the more severe form of the disorder.

And yes, he is on medication therapy for it. He takes Vyvanse in the morning, before school. His Intuniv is taken before bedtime. It also serves as a sleep aide, being that his brain stays in "overdrive". The Intuniv relaxes the centers in the brain to control his sleep pattern. And it helps him focus on going to sleep, along with his bedtime routine rituals.

One thing that I have noted the last few years, as the parent of an ADHD child that is medicated, is that most (not all, mind you) teachers think that the medication is the "magic cure-all" for the ADHD while the child is in their classroom. That cannot be further from the truth.

While the medications DO help the child stay focused, attentive, and with less likelihood to blurt out or talk out of turn (or even go way off the topic at hand), the medicines can only control those points to a certain extent.

The remainder of the ADHD child's success relies upon both the child's willingness to gain SELF-control and SELF-discipline, as well as the teacher's willingness to work with the child to achieve those same goals that ADHD students need to be successful students.

This may mean giving the ADHD child a separate desk area, where fellow students will not be a distraction. Or even asking the child if the student is understanding and able to follow the lesson. The teacher can't be "all mouth". They must be about action as well. This means walking around, using hand gestures. Anything to keep the ADHD child engaged in the lesson.

On average, the typical ADHD child can give you no more than fifteen minutes of their attention. For the ones with severe ADHD, you are lucky, and I mean LUCKY, to get ten minutes of their attention, being most severe cases have an attention span of only five minutes.

Too many teachers rely on medication therapy. And anti-medicating advocates talk about us parents? MOST of us parents tried EVERYTHING else under the sun for our children BEFORE going the "pill route".

Our child's first line of defense of course, are the parents. Then, the doctors and therapeutic team. Teachers though, as well as the other school staff round out the team for these kids. We ALL have to work together to help these children with ADHD be successful . Within the classroom setting, as well as out in the community and within the world.

So, remember that while ADHD medications DO help, it's far from being the "cure-all" route of having a successful child. One-on-one working with your child (or student, if that is the case), providing the appropriate tools for success, and helping them to build their SELF-esteem and SELF-control are the REAL keys for having an ADHD child that is well-rounded, adjusted, organized and an overall good student in the classroom and beyond.

Blog Blast From The Past...Boy Was I *Mad*!

WOW! This blog is from LAST SUMMER where I posted it on my blog page at MySpace. These days now are NOT AS bad, but we still have times where I have the same problems.

Read on, if you wish. But be mindful, at this point in time last year, I was struggling. So was Bryce, and the rest of the family. So in the end, I was (unintentionally) biting heads off. But with good reasons. Both Bryce and I were in a dark place where his problems are concerned.

It's filled with some adult language, and much anger. I am the type that I don't mind advice. But I refuse to be EXPECTED to take it (and use it). Especially from someone that CLEARLY knows NOTHING about my son's conditions, our our life of dealing with them.....



June 28, 2009 - Sunday

Blog Title : Let me give YOU a lesson on what it's like for kids like mine and our families...

Category: Life

As a mother of 3 and a mom of a child with ADHD and a host of other mental disorders I can say that yes, we DO tell these kids "no". And at times have to PHYSICALLY redirect them.

Doesn't always work. Sorry.

They can be VERY manipulative and obviously sneaky.

Thanks for your *ahem* advice anyways to those who love to give it when not even asked for their opinions on the subject matter.

**I love how those that DON'T live with kids like ours thinks that they know all there is in how to *control* them to be PERFECT.**

I have our tool room locked, thanks to my son threatening to KILL ME more than once by bludgeoning me with a hammer.

And my attic door is locked, thanks to him constantly going up there, where it is a dangerous area to be and getting in to things after being told REPEATEDLY to not go up there.

If things don't change soon, we MIGHT have to PAD LOCK all my doors to leave my home due to his running off, jumping off my balcony and running up under a bridge where trains go through SEVERAL times a day.

Anyone that thinks that they can do better with MY child, I extend an invitation to let you keep my kid for ONE MONTH and see just how much progress you make with YOUR way of "straightening" him out and be able to have self-control, less aggression and not be so defiant and have more attention span.

Sound like a deal?

By around 4 PM, my son's Vyvanse wears off. It only works for a set number of hours. And it isn't meant to be taken more than once a day. In the morning, when you need them to focus and be attentive during the daytime.

Vyvanse can make a child lose their appetite for the most part. And instead of eating when they are SUPPOSED to, even with constant coaxing, they will at most times sneak in the middle of the night to the kitchen and get out food and eat when THEY feel hungry enough to eat.

That is one of the huge drawbacks with this and other ADHD medicines. They can severely affect the hunger center of the brain while helping the area that controls impulsivity and attention. It really is a Catch-22.

Where meal time is concerned and the fact that my son more times than not, refuses to eat because he is "not hungry" at meal time (knowing he had NOTHINGin between meals but a few drinks of water, milk or low sugar juice), no matter what was fixed, in my house, if you cook it, then they must eat at least SOME of it. I'm not cooking to cater to suit each individual taste. I am cooking for the family as a WHOLE.

For kids like ours speaking of mine, that are on a medicine that acutly decreases the appetite center of the brain, we must "force" them to eat their meals. And also, they thrive on incentives.

So, if they eat at least 1/2 their meal at dinner, then they get a HEALTHY snack later that evening. That may contain (like for MY family) a small juice box and a granola bar, fruit cereal bar or a small bag of BAKED chips.

Some kids like ours will try to manipulate and "run the show" to ensure that they are getting what THEY (the CHILD) wants.

So, as their parent, we have to have the upper hand and enforce stricter than normal rules upon our child.If that means no extra food (a TREAT) for not complying with OUR rules about eating meals, then so be it.

Don't just assume that our kids get junk food. Because in about 90% of the cases where they are sneaking and hoarding (and hiding) their food, the parents are trying their best and their HARDEST to maintain a HEALTHY lifestyle of eating and portioning.

NO CHILD should have to feel like they aren't "being fed" well enough. And parents of children like ours (mine and the OP) are doing ALL that we can to ensure that our children have the best nutrition and that their nutritional needs ARE being met.It's nowhere near an easy job for us.

And it is especially hard on our kids. Because they honestly CANNOT help how they are or how their brain functions. But not only do their disorder severely affect them, they affect the family as a WHOLE.

Honestly, I have lost count as to how many times my son has (almost severely) hurt either of my two girls. One is 17 months older, the other 3 YEARS younger than him. My son is 8.

Much of the time it's because his impulses say he "needs" a certain toy or other item that they have, so if he doesn't get what "his brain tells him to get", then he acts out violently and basically makes the sister give up the said item. By causing them pain to make them let go and so he can snatch it and take it away.

Right now, my son is is in Intensive In-Home Therapy. And at it's highest level of services. Crisis Intervention. Because he is half a hair away from being placed in a specialized facility to house him and help him more than what we as his parents and the IIHT can do.

Believe me. we have tried everything possible. Yes, from spanking down to time-outs, to taking things away, and grounding.As of this time, we are trying a points system. He has to earn a set amount in five areas of compliance.

If he gets the minimum goal, my son gets ONE privilege of his choice. If he gets a little higher, he gets TWO of them of his choosing. If he makes the full amount of points, then my son can have ALL of his privileges if he chooses so.

But, if he falls BELOW the minimum allowance, then he gets NOTHING. No privileges at all.

So far, even though he is trying to butt heads with me and testing me to see if I will break, the system has thus far been working. I think his seeing his progress and knowing what the deal is, it's finally making some headway. But, it's still early in the game.

Try being up constantly to tell your kid to go back to sleep (knowing he has YET to close the peepers) from 11 PM til around 4 AM.

All because he didn't get his Trazodone for the night. His brain is CONSTANTLY active. It can't "go to sleep" and rest without medical intervention. How he does it, I have no idea.

And being that his brain is so active, losing physical sleep does NOT affect his ability to learn. It primarily affects his moods and compliance with authority figures. Mainly of the FEMALE variety.

Well, now that you have been informed of what I and MANY other parents go through on a DAILY basis with our Special Needs kids with mental disorders, does it honestly sound easy or like that there is a "quick fix" to all of the problems that the kids and us as their parents have to endure?

If you still say YES, then I will let you have my son, WITHOUT his medications and see how easy it is for you to "tame" him and break him as if he is a wild animal.

Some people really amaze me and other moms and dads like myself as to how they view our kids, us as parents and show how IGNORANT of the facts that they really are. It's sad, really.

If anyone should be pitied, it's those types of people. Not us.

My Shining Star (My Son)

Well, yet another chapter has been written for my child. Another diagnosis. Another medication. And I'm okay with it. We know what it is, what it's caused by and how long he could have the problem.

Finally, after almost a month of fighting and nipping the heels of the doctor's office staff manager, the insurance company and making some complaints filed, it happened. Bryce FINALLY got his prescription for the Intuniv approved to be covered by his insurance carrier. That's one less thing to worry about.

As for his oral tics, they have gotten worse. And we noted that they picked up more after the Intuniv was started. Although, we pinpointed that it is NOT the medication causing them. But the medications (one, two, or possibly all three) are bringing them out more than they would usually show.

Bryce has now been diagnosed with Tardive Diskinesia. Basically, his tics are a neurological disorder consisting of abnormal, involuntary body movements caused by certain medicines. It is usually associated with long-term use of medicines for treating schizophrenia and other psychotic disorders. And this disorder will most likely NEVER go away. He has a strong possibility of always having tics to some degree for the rest of his life. And some bouts can and do affect his day-to-day living.

By what we have seen, as early as infancy, he has always had a very mild case of tics. But since starting certain medicines (primarily the Seroquel and the Intuniv that was just added), the tics have become more prominent and vary in degree of progression and regression. They have once again gotten not only in to his mouth region, but also in his hands and feet. Even his eyebrows are getting the tics.

We as his parents, have seen great improvement in everything thanks to the Intuniv being added. He isn't as aggressive, or volatile. He has a better time focusing and being organized. Even his teachers had stated how improved he had been (they did NOT know I placed him on the Intuniv for the first 2 or so weeks). They said he was like day and night with the (positive) changes.

Of course, those changes came with a price. But it's one that all of us (myself, my husband Scott, and Bryce himself) are willing to pay. And that is the severe increase in the tic disorder. I'm calling him my Jumping Jellybean. 

My son, no matter his outward appearance is still a NORMAL, active, (for the most part) healthy boy. He just has A LOT of twitches. And yes, it can impact his speech and verbalizing things he wants to say. It takes him a bit longer to get his sentences out. Patience is the key. For both of us.

In fact, this year, Bryce (for the first time) is taking the Standards Of Learning Tests (math, reading, science, social studies). He has a "Test-Taking Buddy", where he goes off to the teacher's room that does Title-One reading to do his testing. He finds it better to be alone so he can talk-think his answers, doesn't feel as pressured to perform well, and isn't on a time limit (being he is disabled, those are his afforded rights as a disabled student). His scores will come in the mail with his final report card of the 2009-2010 school year.

He may not "look" normal, but he isn't your "average" kid either. He may be at about a 4 to 6-year-old mental-maturity level, but he has been deemed (like his older sister) to be Academically Gifted. He can do work from normal grade (3rd) range, up to 6th-grade-level, based on the subject.

I'm proud of all three of my kids. They are all my shining stars in one way or another. But Bryce's star shines just a tad brighter. He has endured one struggle after another in stride, and with pride. And he has (in his own unique way) shown this old mama just how strong and how far she will go to see that my kids are NEVER 'left behind'. And for that, I will forever be in his debt and he will always have my gratitude.

I'm Me...Don't Expect More, You Won't Get But What I Can Give To The (Blogging) World.

After reading a friend's blog over at http://singedwingangel.blogspot.com/ by it's Author, Angel, I felt like I need to "explain" myself.

I have never been one, even as a little kid (but with rare exception, of course) to want what everyone else has, or to do what everyone else is doing. It's just not in my nature.

I'm the type that I "do my own thing" and I don't care what you think, either. Don't like it? Don't read it/watch it/be around it, I say. I'm not here to honestly please anyone (except my husband, my kids and ultimately, myself).

Have you noticed, I don't have "Bloggy Buttons", I don't do "Carnivals", I don't go out of my way to gain readers, I don't cater to people (unless I ask for topic ideas, which I have, and view as different from 'catering').

My readers come to me. Either by reading a post via Facebook, where it auto-posts my blog entries, by Networked Blogs application over at Facebook, by "word of mouth" via my readers I already have, or by my "Fan Page" I have for this blog page.

I'm not writing really to gain readers or popularity. I write to express myself, my views, my opinions, to share about my life as a mom/wife/Christian/parenting a Special Needs Child. Sometimes, I'm funny as all get out. Sometimes, I'm very serious. And at times, I can be both.

This blog is for ME. It's my outlet. My way of expression. My blog is not for a Popularity Contest, to see how many readers I can get to 'follow' me. Not to gain sympathy or a slew of comments. I like to educate others who may not know what it's like to parent a child with Mental Illness/Disorders/Disabilities. And to educate the populous in regards to Organ/Eye/Tissue Donation (I myself am a Donor, as well as a Corneal Transplant Recipient).

So, while my blog page may look "boring", being I don't have bunch of buttons, links to other bloggers, fancy page decorations and a "Nation's Populations in it's self" number of readers (that most don't even comment anyways), it's who I am...

Simple, comfortable, unpopular (nothing new there lol), and most of all...TRUE TO MYSELF and REAL (what you see on my page, posts and in between is who/what I REALLY am like in the REAL world).

If you want someone to "keep up with the Joneses" in bloggy circles and cliques, please do us both a favor, find another girl (or guy). Because this Blog Writer has too much else to do than keep up with the Joneses. I have a hard enough time keeping up with three kids, three cats, a husband, a two-story home (full basement) and life in general.

*COPY* Of My NEWEST letter to the Gov. of Virgina

April 20, 2010

Dear Gov. McDonnell,

Once before, I had written to you personally to ask that you help me, my son, our family and other families like ours in the fight to place Vyvanse back on the Medicaid's list of available options to treat mental disorders (written on Feb. 5th, 2010). I had received a "round about" reply, and to be honest, it hurt me, thinking that maybe you didn't really care as to what your Virginia Citizens had to say.

But, just a moment ago, I had read an article, via the Roanoke Times (http://www.roanoke.com/news/roanoke/wb/243974)  that indeed you wish to fight FOR our families, not against us. And for that I do thank you.

I can only hope that you, sir took my words in to consideration as to your decision to fight for medications to help treat mental illnesses and disorders placed on (or back on) to Medicaid's Preferred Drug/Drug Availability/Coverage List.

Now, I am begging, not just asking, Mr. Governor, that you take this fight all the way. Do NOT stop. To stop is to fail. Not only yourself or this state. But you would be failing my son and countless other children that require Drug Therapy to help them lead a more "normal" life outside of their mental illness/disorder/disability.

I'm not scared to go up against "professionals" who feel that withholding services from my son is alright. I would take on the Government if I had to myself. My life has been too much filled with adversity from the start for me to back down now. Not for myself. Not for my children.

Please, Mr. McDonnell, give our children the best chance at a good life. Make it easier for me, and other parents to be able to go to the Pharmacy without having to fight for THREE WEEKS between them and Medicaid just to get our children's medicine. No child should have to go that length of time WITHOUT their medication because insurance decided it is in THEIR best interest to no longer cover that medication in their Drug Coverage Plan for it's consumers.

I've now got a renewed faith in you, Governor McDonnell. Please know that I will back you 100%. But I want to see you do your part. I know that you received much flack from us parents (primarily mothers) for letting Medicaid take advantage and in the end, disadvantage our children. I can only hope that WE were your driving force for going up against Medicaid.

Keep fighting the good fight, Mr. Governor. And thank you, from a mom with a very special little guy.

Sincerely,

Melissa A. Cowart (Lynchburg, Virginia)

Boy Sent Back To Homeland ALONE, USA Mom Couldn't Handle Him.

Being a mother is a number one priority in my life. Especially being that my three children are children that the "medical professionals" said I would never have. I had birth defects that if I tried to carry a baby, my body would have gone against me so-to-speak and abort the baby. Plus, I have had a severe case of Ovarian Cystitis since I was a teenager. That too was a factor, being that even then, the cysts that have ravaged my ovaries were scarring them, making it less possible to be fertile.

But, apparently, like in the years before, I defied the odds and surprised the medical community by getting pregnant with my first baby. Sadly, that was an Ectopic, caught in the ovary (of all things). A year later, I had my first born, who is now ten. Seventeen months later, followed her little brother, who will be nine tomorrow.

In 2003, we were pregnant with what was to be our last baby. But it had died in the womb and never fully miscarried. But once more, a year later our youngest daughter was born. She is now five.

After losing two children, having almost lost one (the youngest at weeks eight and twelve of pregnancy, plus severe pre-term labor), I must say that I know that I'm extremely fortunate and blessed to have these three in my life. I would go to the ends of the earth for them....I would give my life for them. I am their best advocate and defender.

My middle son, as many of my readers know, is disabled with several mental disorders. I won't list them here, but you can find them in some of my previous posts. We have been through some tough times, he and I. Including me having to hospitalize him in a Pediatric Psychiatric Ward being that he was severely Manic, impulse-driven, running away to a dangerous area repeatedly and needed major medication adjustment. We have cried together as we both faced fears of knowing he just threatened to KILL ME over simple little things....Yes, it has gotten that severe in his last five years of dealing with Mental Illness.

So, with all of that said, I find it outrageously appalling to see an article about a single, adoptive mother, who adopted her seven-year-old son from Russia, out of one of the orphanages, only to SEND HIM BACK, alone! Yes folks, she sent him back ALONE on an overseas flight back to Russia, with a note attached to him stating (in part), "After giving my best to this child, I am sorry to say that for the safety of my family, friends, and myself, I no longer wish to parent this child."

Where did this woman give her "best" to her son? If she gave her best to him, then she would STILL have him, love him, and get him all of the possible psychological care available. She only got that for HERSELF to see what she could do for him and get advice. Not to truly help him. Not once did she get an evaluation for services done on her son. And she freely admitted to that!

Obviously, she has NO business being a "mother". Adoptive or biological. What mother in their right mind would throw away their child in that manner? She did not even try to get help for the boy.

Read the article here... http://news.yahoo.com/s/ap/20100410/ap_on_re_us/us_russia_adopted_boy

Sure, this woman saw a psychologist, but NEVER took him in to get evaluated and to receive help for his mental problems, that most likely stemmed from his living conditions and trauma in his life back in Russia.

It's certainly apparent that there was an extreme lack of common sense, patience and LOVE on this woman's part. If she REALLY wanted to be a mother, she would have not have sent that little boy back to his native homeland alone on a plane. She instead would have done EVERYTHING possible to help him first, before even fathoming the thought of washing her hands of him.

What my son has displayed over the last five years, I have noted that this little Russian boy has also done or attempted to do. He needs serious help and UNCONDITIONAL love.

I'm hoping that the adoption was finalized here in the States, and that this young man is a citizen of the USA. Then, she will have to get him back and make a difficult choice. One, take him back in and MOTHER him (as in get him HELP in the proper manner and LOVE him as a mother should). Or two, place her son in to a Foster Home situation, give up all parental rights to the child, and let a loving family who WILL help him adopt this troubled boy.

There are days where my nerves have been tested BEYOND their limits and frayed. I hate that my son (who is NOT a bad child) feels like the whole world is against him. That his own mind and body are against him. And he always tells me that he doesn't want to be bad. We are doing all we can in helping him in this fight for a "normal" life.

Yes, my son's mental disability affects the family as a whole. It impedes on his socialization and behavioral skills. He has very few friends. But they are ones that understand (yes kids in his age group CAN understand and do accept children that are not always "like them") that he is just "one of the guys".

I've had people stare at me and him as he has a Manic Episode or a Sensory Issue overload. He can be a real terror in those times. And yes, I have in the past, feared for my life, being that my small son threatened my life, with a HAMMER or a BUTCHER KNIFE in his hand, describing how he is going to kill me "until I'm dead". He has beaten his little sister in the past (mainly pushing her in to a piece of furniture, then slapping her). He has threatened to harm and even kill his big sister.

But never, EVER have I thought of kicking my son to the proverbial curb. Yes, I have thought of placing him in a group home in the past, temporarily. But never to just tell the state to take him and place him permanently somewhere else. I refuse to throw my child (or ANY of the three) away because life with them has becaome extremely difficult.

All I can hope is that this little boy from Russia, who only needed/wanted a LOVING home, with a LOVING family, will find a "forever family" that will take him in and get him all the help that he requires to work through the mental issues that plague him. No child (that has a disability of ANY kind) should be thrown away like a piece of bad meat. Yes, disabled children require more care and attention. But every one of those extra seconds, minutes, hours, days, months, and years is more than well worth it as their parent.

Too bad his "mother" didn't see it that way....