The following are the Myths and the Facts about being or becoming an Organ/Tissue/Eye Donor.
Information (copy/pasted) is provided by the Mayo Clinic.
Myth: If I agree to donate my organs, the hospital staff won't work as hard to save my life.
Fact: When you go to the hospital for treatment, doctors focus on saving your life — not somebody else's. You'll be seen by a doctor whose specialty most closely matches your particular emergency. The doctor in charge of your care has nothing to do with transplantation.
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Myth: Maybe I won't really be dead when they sign my death certificate.
Fact: Although it's a popular topic in the tabloids, in reality, people don't start to wiggle their toes after they're declared dead. In fact, people who have agreed to organ donation are given more tests (at no charge to their families) to determine that they're truly dead than are those who haven't agreed to organ donation.
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Myth: Organ donation is against my religion.
Fact: Organ donation is consistent with the beliefs of most religions. This includes Catholicism, Protestantism, Islam and most branches of Judaism. If you're unsure of or uncomfortable with your faith's position on donation, ask a member of your clergy. Another option is to check the federal Web site OrganDonor.gov, which provides religious views on organ donation and transplantation by denomination.
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Myth: I'm under age 18. I'm too young to make this decision.
Fact: That's true, in a legal sense. But your parents can authorize this decision. You can express to your parents your wish to donate, and your parents can give their consent knowing that it's what you wanted. Children, too, are in need of organ transplants, and they usually need organs smaller than those an adult can provide.
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Myth: An open-casket funeral isn't an option for people who have donated organs or tissues.
Fact: Organ and tissue donation doesn't interfere with having an open-casket funeral. The donor's body is clothed for burial, so there are no visible signs of organ or tissue donation. For bone donation, a rod is inserted where bone is removed. With skin donation, a very thin layer of skin similar to a sunburn peel is taken from the donor's back. Because the donor is clothed and lying on his or her back in the casket, no one can see any difference.
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Myth: I'm too old to donate. Nobody would want my organs.
Fact: There's no defined cutoff age for donating organs. Organs have been successfully transplanted from donors in their 70s and 80s. The decision to use your organs is based on strict medical criteria, not age. Don't disqualify yourself prematurely. Let the doctors decide at your time of death whether your organs and tissues are suitable for transplantation.
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Myth: I'm not in the best of health. Nobody would want my organs or tissues.
Fact: Very few medical conditions automatically disqualify you from donating organs. The decision to use an organ is based on strict medical criteria. It may turn out that certain organs are not suitable for transplantation, but other organs and tissues may be fine. Don't disqualify yourself prematurely. Only medical professionals at the time of your death can determine whether your organs are suitable for transplantation.
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Myth: I'd like to donate one of my kidneys now, but I wouldn't be allowed to do that unless one of my family members is in need.
Fact: While that used to be the case, it isn't any longer. Whether it's a distant family member, friend or complete stranger you want to help, you can donate a kidney through certain transplant centers. If you decide to become a living donor, you will undergo extensive questioning to ensure that you are aware of the risks and that your decision to donate isn't based on financial gain. You will also undergo testing to determine if your kidneys are in good shape and whether you can live a healthy life with just one kidney.
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Myth: Rich and famous people go to the top of the list when they need a donor organ.
Fact: The rich and famous aren't given priority when it comes to allocating organs. It may seem that way because of the amount of publicity generated when celebrities receive a transplant, but they are treated no differently from anyone else. In fact, the United Network for Organ Sharing (UNOS), the organization responsible for maintaining the national organ transplant network, subjects all celebrity transplants to an internal audit to make sure the organ allocation was appropriate.
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Myth: My family will be charged if I donate my organs.
Fact: The organ donor's family is never charged for donating. The family is charged for the cost of all final efforts to save your life, and those costs are sometimes misinterpreted as costs related to organ donation. Costs for organ removal go to the transplant recipient.
My work is ORIGINAL...Don't be a thief.
What is written in this blog, is of the author's own originality. It contains the sole views, thoughts, and stories of this blog's author.
Showing posts with label organ donation. Show all posts
Showing posts with label organ donation. Show all posts
Sunday, April 3, 2011
Saturday, April 2, 2011
Donation... Give the gift of Smiles & of Yourself.
A while back, I had written a post about an experience that took myself and my husband by surprise. We knew that when the time was right, we were going to pass on the gift of giving to someone. We have since been on the lookout of who and how we were going to "Pay It Forward" to.
This is a concept I already had in mind for myself though, since I had turned the age of eighteen. Since then, I have been a Registered Donor to donate anything I can in the event of my death.
Who knew that at the age of thirty-two, just fourteen years after becoming a Donor, that I also would be seeing the whole topic of Organ/Tissue Donation from the other side of the fence. You can read my Corneal Transplant Recipient story HERE.
But also, I have been able to "pay it forward" monetarily. And thanks to the donations that were all pooled together, a record twenty-five children were able to purchase books at the Spring Book Fair at school.
Hayley had found a $100 bill in the school's soccer field a while back and brought it home. Sure I got on her for not turning it in right away. But then, I myself constantly forgot to take it with me to turn in as well.
So, seeing as so much time has passed, we (Scott and I collectively) decided to donate the $100 to the school's Library for the Book Fair's "Students in Need" box. After the totals were counted, there was close to $190.00 to split between the kids. Pre-K through Fist grade students were able to spend up to $5 and those in Second through Fifth grade were able to spend up to $10.
It felt wonderful to see the long list and know that so many children were being helped this year. I'm NOT happy that they had to be on it, because of such financial hardships in their families. But I AM happy that these kids were able to continue on the path to a wonderful love and enjoyment of reading.
Although, there is something else, along with the love of reading that is very close to my heart. That is Organ/Tissue Donation Awareness. Not just because I am a Registered Donor, as is my husband. But because we as a family have experienced firsthand the miracles of Tissue Donation. To be able to regain (most of) my sight back is an honest miracle. And as a mother, being down just ONE eye is hard to deal with. No matter how much you do to "adapt".
Did you know that you can be a LIVING Donor? Blood, a piece of your liver, a kidney, bone marrow, tendons and other tissues.
Then, you have Donors that donate skin, corneas, major organs such as your hearts and lungs. Plus cadaver (deceased) donors can give their tissues, bones, livers, kidneys, and intestines.
Right now, in the United States of America, the statistics for Recipients CURRENTLY awaiting their "gifts of LIFE" stands at (provided by Organ Procurement & Transplant Network)..
All Organs 110,484
Kidney 88,087
Liver 16,164
Pancreas 1,384
Heart 3,188
Lung 1,758
Intestine 265
As a Registered Donor, you can potentially save up to eight people's lives, and enrich and better about 50 lives.
Giving has always been a part of me and of who I am. I give what I can, where I can, when I can. So signing up to be an Organ/Eye/Tissue Donor was a no-brainer for me. If you are interested in becoming a Donor, please visit OrganDonor.Gov or United Network for Organ Sharing (UNOS) and find out more Organ Transplantation and becoming a HERO, and to find out how to register in your state or Provence.
Because to us, our Donors (living and deceased), and their families are indeed our HEROES!
This is a concept I already had in mind for myself though, since I had turned the age of eighteen. Since then, I have been a Registered Donor to donate anything I can in the event of my death.
Who knew that at the age of thirty-two, just fourteen years after becoming a Donor, that I also would be seeing the whole topic of Organ/Tissue Donation from the other side of the fence. You can read my Corneal Transplant Recipient story HERE.
But also, I have been able to "pay it forward" monetarily. And thanks to the donations that were all pooled together, a record twenty-five children were able to purchase books at the Spring Book Fair at school.
Hayley had found a $100 bill in the school's soccer field a while back and brought it home. Sure I got on her for not turning it in right away. But then, I myself constantly forgot to take it with me to turn in as well.
So, seeing as so much time has passed, we (Scott and I collectively) decided to donate the $100 to the school's Library for the Book Fair's "Students in Need" box. After the totals were counted, there was close to $190.00 to split between the kids. Pre-K through Fist grade students were able to spend up to $5 and those in Second through Fifth grade were able to spend up to $10.
It felt wonderful to see the long list and know that so many children were being helped this year. I'm NOT happy that they had to be on it, because of such financial hardships in their families. But I AM happy that these kids were able to continue on the path to a wonderful love and enjoyment of reading.
Although, there is something else, along with the love of reading that is very close to my heart. That is Organ/Tissue Donation Awareness. Not just because I am a Registered Donor, as is my husband. But because we as a family have experienced firsthand the miracles of Tissue Donation. To be able to regain (most of) my sight back is an honest miracle. And as a mother, being down just ONE eye is hard to deal with. No matter how much you do to "adapt".
Did you know that you can be a LIVING Donor? Blood, a piece of your liver, a kidney, bone marrow, tendons and other tissues.
Then, you have Donors that donate skin, corneas, major organs such as your hearts and lungs. Plus cadaver (deceased) donors can give their tissues, bones, livers, kidneys, and intestines.
Right now, in the United States of America, the statistics for Recipients CURRENTLY awaiting their "gifts of LIFE" stands at (provided by Organ Procurement & Transplant Network)..
All Organs 110,484
Kidney 88,087
Liver 16,164
Pancreas 1,384
Heart 3,188
Lung 1,758
Intestine 265
As a Registered Donor, you can potentially save up to eight people's lives, and enrich and better about 50 lives.
Giving has always been a part of me and of who I am. I give what I can, where I can, when I can. So signing up to be an Organ/Eye/Tissue Donor was a no-brainer for me. If you are interested in becoming a Donor, please visit OrganDonor.Gov or United Network for Organ Sharing (UNOS) and find out more Organ Transplantation and becoming a HERO, and to find out how to register in your state or Provence.
Because to us, our Donors (living and deceased), and their families are indeed our HEROES!
Saturday, February 26, 2011
In Transplant News This Past Week...
This past week has been filled with appalling headlines. Both of which I'd known about earlier on. But one thing has become "official", whereas the other news of noting is still "in the works". In the end, both stories go against ethics of humanity and ethics within the Transplant world.
First of all, let's talk about the (ahem) 'lovely' Janet Brewer, Governor of Arizona and her cuts that SHE passed in to affect.
I'd written a piece about her and what her plans were a while back in regards to those that are waiting on organs and are served by the state's Medicaid Assistance. To read that post, CLICK HERE.
Now, these "Death Panels" have been officially put in to place. The cards are all laid out. And HUNDREDS of Arizona citizens that are waiting on a LIFE SAVING organ transplant will NOT live long enough to get it.
Why? Because the worst of the worst will be removed from the Waiting List, and are on Medicaid Assistance in the state of Arizona.
Governor Brewer signed in to affect, budget cuts to "save money" in her state. One of those slashes were to Medicaid. And primarily those waiting on an Organ Transplant.
To read the latest article on it, CLICK HERE. This is an older article, yes, But now Janet Brewer has set in to motion, a wave of death.
Now, as for the other article that has been capturing my attention, and has for some time now, as the story has been unfolding is the story of the two sisters from Mississippi who were sentenced to LIFE in prison for their crimes, but were RELEASED after serving sixteen years, on ONE condition... That one sister IS to donate a kidney to the other, who's own kidney is failing.
Apparently, the judge that ordered this "new sentence" is not very well versed in the rules, regulations, ethics and overall practices of Organ Donation. Because if the idiot was, he would KNOW that to FORCE anyone to be an organ donor (especially when it's NOT known at the time if indeed the sisters are an actual match) is considered unlawful and goes against EVERYTHING that UNOS (United Network for Organ Sharing) stands for and has laid out as the procedures to give and receive organs.
To read the article in reference to the criminal sisters who got off on a strange "technicality", CLICK HERE.
They were ALLOWED to move out of state (which normally is a no-no with Probation). But the transplant cannot take place until they BOTH lose weight. And hey, they get a PERSONAL TRAINER for that, and Gastric Bypass Surgery. Then of course, the Organ Transplant Surgery.
Like the doctors, I'd REALLY love to know WHO is going to pay for this? It's obvious that neither of them have medical insurance. And by my understanding of practice, the patient MUST have some kind of medical insurance to be approved as a Recipient.
Plus the Judge who ordered this weird release states that the transplant MUST happen within a year, or (hypothetically) they will be sent BACK to prison. WTF?? I say that they should have NEVER left on these types of terms.
Maybe I should have been imprisoned BEFORE my transplant that I had for my eye. Then all MY bills would be paid FOR me. Instead, I have pretty good insurance, but still stuck with on-going bills for the REST OF MY LIFE for the transplant its self and for the lifelong, on-going care I will need (and possibly ANOTHER Corneal Transplant down the road). Because apparently, it PAYS to be in prison these days, instead of a "punishment".
First of all, let's talk about the (ahem) 'lovely' Janet Brewer, Governor of Arizona and her cuts that SHE passed in to affect.
I'd written a piece about her and what her plans were a while back in regards to those that are waiting on organs and are served by the state's Medicaid Assistance. To read that post, CLICK HERE.
Now, these "Death Panels" have been officially put in to place. The cards are all laid out. And HUNDREDS of Arizona citizens that are waiting on a LIFE SAVING organ transplant will NOT live long enough to get it.
Why? Because the worst of the worst will be removed from the Waiting List, and are on Medicaid Assistance in the state of Arizona.
Governor Brewer signed in to affect, budget cuts to "save money" in her state. One of those slashes were to Medicaid. And primarily those waiting on an Organ Transplant.
To read the latest article on it, CLICK HERE. This is an older article, yes, But now Janet Brewer has set in to motion, a wave of death.
Now, as for the other article that has been capturing my attention, and has for some time now, as the story has been unfolding is the story of the two sisters from Mississippi who were sentenced to LIFE in prison for their crimes, but were RELEASED after serving sixteen years, on ONE condition... That one sister IS to donate a kidney to the other, who's own kidney is failing.
Apparently, the judge that ordered this "new sentence" is not very well versed in the rules, regulations, ethics and overall practices of Organ Donation. Because if the idiot was, he would KNOW that to FORCE anyone to be an organ donor (especially when it's NOT known at the time if indeed the sisters are an actual match) is considered unlawful and goes against EVERYTHING that UNOS (United Network for Organ Sharing) stands for and has laid out as the procedures to give and receive organs.
To read the article in reference to the criminal sisters who got off on a strange "technicality", CLICK HERE.
They were ALLOWED to move out of state (which normally is a no-no with Probation). But the transplant cannot take place until they BOTH lose weight. And hey, they get a PERSONAL TRAINER for that, and Gastric Bypass Surgery. Then of course, the Organ Transplant Surgery.
Like the doctors, I'd REALLY love to know WHO is going to pay for this? It's obvious that neither of them have medical insurance. And by my understanding of practice, the patient MUST have some kind of medical insurance to be approved as a Recipient.
Plus the Judge who ordered this weird release states that the transplant MUST happen within a year, or (hypothetically) they will be sent BACK to prison. WTF?? I say that they should have NEVER left on these types of terms.
Maybe I should have been imprisoned BEFORE my transplant that I had for my eye. Then all MY bills would be paid FOR me. Instead, I have pretty good insurance, but still stuck with on-going bills for the REST OF MY LIFE for the transplant its self and for the lifelong, on-going care I will need (and possibly ANOTHER Corneal Transplant down the road). Because apparently, it PAYS to be in prison these days, instead of a "punishment".
Wednesday, February 9, 2011
I'm "Pouring Out My Heart" as I am "Cleaning Out My Closet".
I decided to "double dip" today, which is really a rare thing. Today, this post will serve as both a participant in Shell's
..and For The Love Of Blog's (Vic's)
As most of my readers know, I required a Corneal Transplant back in October of 2009. I had a bad infection invade the eye its self, then it also eroded the cornea. But I perforated the entire cornea when I accidentally poked myself in the eye.
While I have fairly good eyesight (colors, some shape, light) I still have problems. One being a cataract that will eventually need removal. I still have eight of sixteen stithces left to go.
I have my good days. But lately, I have had a rough go. I don't often complain on here or on Facebook or Twitter. I don't want to sound like a "whiner".
And most people, if they don't understand that a transplant is NOT a "cure all" think that the recipient must be ALWAYS happy and feel "lucky".
In all honesty, lately I've had some trouble where infection is TRYING to attack again. Not bad, but in an annoying way. I am working on getting it calmed as we speak.Add in sinus trouble also making my eye a bit unnerved and it's an all out "party"
Sometimes, I wish that they did take the eye. Then I'd have no more drops, no more stitches needing to removed. No cataract to be taken out. No mounting doctor bills for "after care" that constantly come at me. And no chance of needing a SECOND transplant later on down the road.
Is it selfish and ungrateful of me to think and feel this way? Maybe. But I also feel that my children have been through enough with their mother having one set back after another with her eye in one way or another.
Yes, I am so very thankful to my donor and their family. Without their gift, I would have no sight at all. But also my children and I are paying a price. As is my husband. Not just monetarily.
Organ and tissue transplants are not the cure all to the problem with that organ or tissue. In fact, you go from having one set of problems, to a new kind of set. Mainly dealing with the chance of rejection. It CAN happne a day later or many years down the road. And we live in the thought of "is this the day that it all goes downhill and we have to start over again?". It's not a life I wish on anyone. Even for "just an eye".
I'm angry. At my skin condition that invaded my eye. I'm angry at myself for not getting that under control sooner. I'm angry that my body turned against me. I'm angry that another family had to suffer a loss. I'm angry that it took someone to die for me to be able to see with both of my eyes.
While I may smile and "look" or even "sound" happy on the outside, inside, especially right now, I'm screaming and seething. Because right now, I feel that I have lost a battle (again) that I have fought hard to win and overcome for the last year and a half.
..and For The Love Of Blog's (Vic's)
As most of my readers know, I required a Corneal Transplant back in October of 2009. I had a bad infection invade the eye its self, then it also eroded the cornea. But I perforated the entire cornea when I accidentally poked myself in the eye.
While I have fairly good eyesight (colors, some shape, light) I still have problems. One being a cataract that will eventually need removal. I still have eight of sixteen stithces left to go.
I have my good days. But lately, I have had a rough go. I don't often complain on here or on Facebook or Twitter. I don't want to sound like a "whiner".
And most people, if they don't understand that a transplant is NOT a "cure all" think that the recipient must be ALWAYS happy and feel "lucky".
In all honesty, lately I've had some trouble where infection is TRYING to attack again. Not bad, but in an annoying way. I am working on getting it calmed as we speak.Add in sinus trouble also making my eye a bit unnerved and it's an all out "party"
Sometimes, I wish that they did take the eye. Then I'd have no more drops, no more stitches needing to removed. No cataract to be taken out. No mounting doctor bills for "after care" that constantly come at me. And no chance of needing a SECOND transplant later on down the road.
Is it selfish and ungrateful of me to think and feel this way? Maybe. But I also feel that my children have been through enough with their mother having one set back after another with her eye in one way or another.
Yes, I am so very thankful to my donor and their family. Without their gift, I would have no sight at all. But also my children and I are paying a price. As is my husband. Not just monetarily.
Organ and tissue transplants are not the cure all to the problem with that organ or tissue. In fact, you go from having one set of problems, to a new kind of set. Mainly dealing with the chance of rejection. It CAN happne a day later or many years down the road. And we live in the thought of "is this the day that it all goes downhill and we have to start over again?". It's not a life I wish on anyone. Even for "just an eye".
I'm angry. At my skin condition that invaded my eye. I'm angry at myself for not getting that under control sooner. I'm angry that my body turned against me. I'm angry that another family had to suffer a loss. I'm angry that it took someone to die for me to be able to see with both of my eyes.
While I may smile and "look" or even "sound" happy on the outside, inside, especially right now, I'm screaming and seething. Because right now, I feel that I have lost a battle (again) that I have fought hard to win and overcome for the last year and a half.
Saturday, October 30, 2010
One Year and Counting
Yesterday was filled with a lot of laughter, smiles and fun. But deep down, I knew exactly what the day was all about. Some of it, sad. While, for the most part, good.
I'd spent the entire school day in my youngest daughter's Kindergarten class. We carved real pumpkins in "teams". Then we did a ton of different crafts. Including my 'Jack-O-Lantern Jug' that they have an option to use as a candy collection jug for Trick-Or-Treating.
After trying to think of something to do to commemorate the special meaning of October 29th as being the Transplant Anniversary since having my new Cornea placed in, helping me to once more see, and even be able to keep the whole eye that at this time last year was ravaged with infection to the point is nearly impossible to save it, I think I found my way of honoring my Donor, their family and the significance of the day.
I had fun. I smiled. I played with the wonderful children I help every week in the classroom. I even danced with the kids at the Halloween Dance that was put on for them after school. I lived life as I always have. As a survivor of the hurdles I have had to face, and as the mother I was before my sight in the left eye was robbed, thanks to infection and an accident.
As I sit here and think back about the past week, I honestly cannot think of a better way to thank and honor such a gift, or the Donor that gave of themselves. To live my life. Be happy. To be the mother that I was meant to be to my children. To be the wife I have striven to be for my husband for the past eight years of our marriage. To be the friend that I have always been or have to tried to have been to others.
My donor gave me what was robbed of me in a matter of seconds. Even though apparently, the damage was already severely done over the prior months before. But it took just one accidental poke with my own knuckle to complete what the infection set out to do. To take away my sight completely from my left eye.
Almost a month later, my Donor gave me their cornea, thanks to their loving gift at the end of their life, and to sheer luck that one was readily available to fit my needs.
At first, it killed me inside to know that I had to have someone die to let me live my life as I have always known. I had "Survivor's Guilt". Especially when Thanksgiving and Christmas came around. I knew that as I sat down to dinner and opening gifts, another family was sitting around grieving and wishing that their loved one was still here to enjoy life and the holidays with.
Now that the year has come along, and I am pretty much back to normal like before all of this had happened, I no longer try to think about things in a "sad way". I know deep within my heart, my Donor is happy with my getting back on with life and enjoying being a wife and a mother.
They gave me my life back. And for that, I will FOREVER be grateful. To them, and to their family. And I have realized, at least for me personally, the best way to honor them, not just on October 29th, but EVERY single day of the year, is to just live my life to the fullest capacity, smile as much as I can, and know that THEY TO know just how thankful that I am of the gift that they bravely and heroically gave to me.
I'd spent the entire school day in my youngest daughter's Kindergarten class. We carved real pumpkins in "teams". Then we did a ton of different crafts. Including my 'Jack-O-Lantern Jug' that they have an option to use as a candy collection jug for Trick-Or-Treating.
After trying to think of something to do to commemorate the special meaning of October 29th as being the Transplant Anniversary since having my new Cornea placed in, helping me to once more see, and even be able to keep the whole eye that at this time last year was ravaged with infection to the point is nearly impossible to save it, I think I found my way of honoring my Donor, their family and the significance of the day.
I had fun. I smiled. I played with the wonderful children I help every week in the classroom. I even danced with the kids at the Halloween Dance that was put on for them after school. I lived life as I always have. As a survivor of the hurdles I have had to face, and as the mother I was before my sight in the left eye was robbed, thanks to infection and an accident.
As I sit here and think back about the past week, I honestly cannot think of a better way to thank and honor such a gift, or the Donor that gave of themselves. To live my life. Be happy. To be the mother that I was meant to be to my children. To be the wife I have striven to be for my husband for the past eight years of our marriage. To be the friend that I have always been or have to tried to have been to others.
My donor gave me what was robbed of me in a matter of seconds. Even though apparently, the damage was already severely done over the prior months before. But it took just one accidental poke with my own knuckle to complete what the infection set out to do. To take away my sight completely from my left eye.
Almost a month later, my Donor gave me their cornea, thanks to their loving gift at the end of their life, and to sheer luck that one was readily available to fit my needs.
At first, it killed me inside to know that I had to have someone die to let me live my life as I have always known. I had "Survivor's Guilt". Especially when Thanksgiving and Christmas came around. I knew that as I sat down to dinner and opening gifts, another family was sitting around grieving and wishing that their loved one was still here to enjoy life and the holidays with.
Now that the year has come along, and I am pretty much back to normal like before all of this had happened, I no longer try to think about things in a "sad way". I know deep within my heart, my Donor is happy with my getting back on with life and enjoying being a wife and a mother.
They gave me my life back. And for that, I will FOREVER be grateful. To them, and to their family. And I have realized, at least for me personally, the best way to honor them, not just on October 29th, but EVERY single day of the year, is to just live my life to the fullest capacity, smile as much as I can, and know that THEY TO know just how thankful that I am of the gift that they bravely and heroically gave to me.
Friday, June 18, 2010
The Life And Limitations Of A Corneal Graft Recipient
Over on my profile page at Facebook, a friend of mine had some questions about my Corneal Transplant that I had done in October of last year. I'm almost eight months post-transplant. Barring a few complications, so far, I'm doing quite well.
My friend's father had passed away a while back, and she had his corneas donated. They went to two different individuals. Thanks to her gift of her father's corneas, two more people are able to see the world around them.
There is sadly not as much conversation, education and awareness, as well as support for Corneal Grafting Transplants. We seem to be on the back burner. Mainly because to many it's "just an eye" and it's "just tissue". But the reality is...it is SO MUCH more than that!
Corneas are literally the windows to the world around us. Without corneas, you would not be able to see. AT ALL! Nor can you protect your eyes from MOST infections. Especially those that are air-borne caused.
Like many other things. Your eyes (and your corneas) get taken for granted. That is, until you lose the cornea, your sight, and almost the entire eye(s).
Here are the questions that she asks, and my answers.
Can you drive after you've had a cornea transplant ? No, not at this time. Due to complications of tight stitching and an ever-more developing Cataract, I am Legally Blind and would not be able to see things clearly from the left side or from my peripheral vision, which is still limited as well.
What about contact sports, swimming, flying etc? I can now just go back in to the water, but must be careful doing so. Contact sports are still a no-no. Flying, I don't know of yet either. I'm hoping to be allowed to get on roller coasters this summer with my kids at King's Dominion. Should know today, being I have a two-month checkup this afternoon.
Can the pressure from those cause damage to the transplant ? Ocular pressure certainly can harm the transplant. This is why it is checked at every visit. And for the first six weeks post-transplant, I wasn't allowed to bend at the waist, pick up objects (even my child) if they were over a specified weight, and even sex was banned.
Also, for the first week, I was not allowed to take a regular shower or wash my hair. I wasn't allowed to use face wash for the first month. I didn't color my hair again until like four months after surgery.
Just the other weekend, I got in to the pool. Before then, that was a no-no due to the chemicals used.
We (Corneal Graft patients) are placed on the ocular version of Prednisone. The side effects remain within the eye region, instead of having overall systemic effects.
I'm pretty sure I have some nerve damage in the way of nerve sensitivity. Now extreme heat (over 350 from an oven) and extreme cold (like from a freezer) either gives me a sharp pain or a "searing" feeling. I noticed those the first time I got to cook again, and when I opened a freezer section door at the store. And it's been like that ever since.
If anyone has ANY question in regards to Corneal Transplantation, or Donation, please feel free to ask away. Also, if you have yet to become a registered Organ/Tissue/Eye/Bone Donor, please click HERE and become a HERO.
My friend's father had passed away a while back, and she had his corneas donated. They went to two different individuals. Thanks to her gift of her father's corneas, two more people are able to see the world around them.
There is sadly not as much conversation, education and awareness, as well as support for Corneal Grafting Transplants. We seem to be on the back burner. Mainly because to many it's "just an eye" and it's "just tissue". But the reality is...it is SO MUCH more than that!
Corneas are literally the windows to the world around us. Without corneas, you would not be able to see. AT ALL! Nor can you protect your eyes from MOST infections. Especially those that are air-borne caused.
Like many other things. Your eyes (and your corneas) get taken for granted. That is, until you lose the cornea, your sight, and almost the entire eye(s).
Here are the questions that she asks, and my answers.
Can you drive after you've had a cornea transplant ? No, not at this time. Due to complications of tight stitching and an ever-more developing Cataract, I am Legally Blind and would not be able to see things clearly from the left side or from my peripheral vision, which is still limited as well.
What about contact sports, swimming, flying etc? I can now just go back in to the water, but must be careful doing so. Contact sports are still a no-no. Flying, I don't know of yet either. I'm hoping to be allowed to get on roller coasters this summer with my kids at King's Dominion. Should know today, being I have a two-month checkup this afternoon.
Can the pressure from those cause damage to the transplant ? Ocular pressure certainly can harm the transplant. This is why it is checked at every visit. And for the first six weeks post-transplant, I wasn't allowed to bend at the waist, pick up objects (even my child) if they were over a specified weight, and even sex was banned.
Also, for the first week, I was not allowed to take a regular shower or wash my hair. I wasn't allowed to use face wash for the first month. I didn't color my hair again until like four months after surgery.
Just the other weekend, I got in to the pool. Before then, that was a no-no due to the chemicals used.
We (Corneal Graft patients) are placed on the ocular version of Prednisone. The side effects remain within the eye region, instead of having overall systemic effects.
I'm pretty sure I have some nerve damage in the way of nerve sensitivity. Now extreme heat (over 350 from an oven) and extreme cold (like from a freezer) either gives me a sharp pain or a "searing" feeling. I noticed those the first time I got to cook again, and when I opened a freezer section door at the store. And it's been like that ever since.
If anyone has ANY question in regards to Corneal Transplantation, or Donation, please feel free to ask away. Also, if you have yet to become a registered Organ/Tissue/Eye/Bone Donor, please click HERE and become a HERO.
Saturday, June 5, 2010
Organ/Tissue Donation....Distorting the MYTHS. Stating the FACTS.
Organ Donation. It is one of the most selfless, heroic acts a person can do for their fellow man. It gives another person (or a number of people) a new lease on life. A second chance that would not have come otherwise.
Since it's founding and inception, Organ, Tissue, and Eye Donation have made great strides, and had come a long way where medical technology is concerned.
Too bad public education and awareness have neither made the same wonderful strides since that time. There are so many myths, half truths and all-out lies when it comes to the topic of Organ/Tissue/Eye Donation. Some are classics that you have heard so many times, it's like second nature and doesn't even phase you when you hear the words blurted out unexpectedly.
The number one myth/lie I tend to hear the most is... "If I have an accident or other tragic medical emergency, and I am a Registered Organ Donor, then the EMS and the Emergency Department/hospital will NOT do EVERYTHING in their power to save my life, so that they can get my organs".
How very, VERY untrue that this statement is. All medical professionals are to do EVERYTHING in their means and within their power to save lives. No matter if the patient is an organ donor, or not.
Another is.. "They might take my 'parts' when I am still legally alive, but look like I am dead".
Yet, this is another false statement. The Transplant Coordination Team must do various, and rigorous tests, including several EEG's, eye dilation test, and nerve sensation testing. After all of those are completed (multiple times) and each time nothing changes with negative results for EVERY time, then the patient is declared BRAIN DEAD (which is a legal form of death), and also their only means of having a heartbeat and breathing lungs is via the ventilator.
There were comments on a Fan Page I belong in regards to the possibility of New York mandating an "Opt-Out" Organ Donation System, where you are of "presumed consent to donate", unless you sign a paper/check a box for your State-issued Driver's License or ID that you wish to NOT be an Organ Donor. Basically, it is donation in reverse. Instead of VOLUNTARILY giving your organs, you will be PRESUMED to be a donor, unless you say otherwise.
Some of the comments were either of a selfish nature, or of not enough self-education in to the ins and outs of donating.
There are some people that don't want to donate being that they would only want to have their "parts" go to 'good people', not "killers, rapists" and others deemed less fitting of society.
There was one comment where an ADULT female would only donate (including her heart) ONLY to children. Sadly to say though, an adult (for the most part) cannot donate their organs to a child. Especially the heart and the lungs.
The only adult organs that are able to be cross-matched with children (TO MY KNOWLEDGE) is heart valves, and the liver (that can be cut in to 7 or 8 pieces and will regenerate to full size in the host body), skin, and the corneas (window of the eye).
Otherwise, there is no feasible ability to transplant adult organs in to children. Not unless the recipient's chest wall, kidney areas are of a compatible size of their donors.
In all real honesty, the last two excuses/explanations I gave as to why people wish to NOT donate their organs after their death are the two most selfish. Yes, children (especially infants and other small children) are at the greatest need of transplants. And they have the highest rate of donor shortage. But I do NOT fault the parents of deceased children. It is hard enough to lose your child, only to have to make a DRASTIC decision like that, at such a critical, emotional and bereaved time such as that.
But unlike the latter, I don't see where, in my mind and personal opinion, that there is a valid excuse to NOT donate (other than for religious practice/belief reasons). Especially when you put a "price" on donating. Such as stipulating that you only want a "good person or people" to have your organs. Or that as an adult only wants to give to children, which will make what you CAN give, very little.
Speaking of "setting a price" on Organ Donation. That is another misconception I caught on that Fan Page board. Some one (who rides motorcycles) said that he wouldn't want to donate, being that the DONOR family gets dumped with the cost of procurement, transporting of the organs and tissues, and for the RECIPIENT's surger(ies).
Again, a FALSE statement/myth/accusation. Nothing, and I mean *NOTHING* is charged to the Donor or their family for *any* part of the Transplant process. That all befalls to the RECIPIENT. Believe me, I know. Just for my cornea (not including harvesting, transportation, or transplantation) cost me $3,000.00. ME!....Not my donor or their family. It is against FEDERAL law to charge a single dime to the Donor or their loved ones being a donor or for the donation process.
So, I hope that for those of you that are still deciding to become an Organ/Tissue Donor, or for those of you that never really knew much about the process have read this and have taken something away (positive) about the TRUTH of being a Donor.
I truly believe that if more people were to self-educate (through reputable organizations, websites and through personal experiences of recipients) of exactly how Donation works, there would be MILLIONS more people willing to sign up to be a HERO.
Since it's founding and inception, Organ, Tissue, and Eye Donation have made great strides, and had come a long way where medical technology is concerned.
Too bad public education and awareness have neither made the same wonderful strides since that time. There are so many myths, half truths and all-out lies when it comes to the topic of Organ/Tissue/Eye Donation. Some are classics that you have heard so many times, it's like second nature and doesn't even phase you when you hear the words blurted out unexpectedly.
The number one myth/lie I tend to hear the most is... "If I have an accident or other tragic medical emergency, and I am a Registered Organ Donor, then the EMS and the Emergency Department/hospital will NOT do EVERYTHING in their power to save my life, so that they can get my organs".
How very, VERY untrue that this statement is. All medical professionals are to do EVERYTHING in their means and within their power to save lives. No matter if the patient is an organ donor, or not.
Another is.. "They might take my 'parts' when I am still legally alive, but look like I am dead".
Yet, this is another false statement. The Transplant Coordination Team must do various, and rigorous tests, including several EEG's, eye dilation test, and nerve sensation testing. After all of those are completed (multiple times) and each time nothing changes with negative results for EVERY time, then the patient is declared BRAIN DEAD (which is a legal form of death), and also their only means of having a heartbeat and breathing lungs is via the ventilator.
There were comments on a Fan Page I belong in regards to the possibility of New York mandating an "Opt-Out" Organ Donation System, where you are of "presumed consent to donate", unless you sign a paper/check a box for your State-issued Driver's License or ID that you wish to NOT be an Organ Donor. Basically, it is donation in reverse. Instead of VOLUNTARILY giving your organs, you will be PRESUMED to be a donor, unless you say otherwise.
Some of the comments were either of a selfish nature, or of not enough self-education in to the ins and outs of donating.
There are some people that don't want to donate being that they would only want to have their "parts" go to 'good people', not "killers, rapists" and others deemed less fitting of society.
There was one comment where an ADULT female would only donate (including her heart) ONLY to children. Sadly to say though, an adult (for the most part) cannot donate their organs to a child. Especially the heart and the lungs.
The only adult organs that are able to be cross-matched with children (TO MY KNOWLEDGE) is heart valves, and the liver (that can be cut in to 7 or 8 pieces and will regenerate to full size in the host body), skin, and the corneas (window of the eye).
Otherwise, there is no feasible ability to transplant adult organs in to children. Not unless the recipient's chest wall, kidney areas are of a compatible size of their donors.
In all real honesty, the last two excuses/explanations I gave as to why people wish to NOT donate their organs after their death are the two most selfish. Yes, children (especially infants and other small children) are at the greatest need of transplants. And they have the highest rate of donor shortage. But I do NOT fault the parents of deceased children. It is hard enough to lose your child, only to have to make a DRASTIC decision like that, at such a critical, emotional and bereaved time such as that.
But unlike the latter, I don't see where, in my mind and personal opinion, that there is a valid excuse to NOT donate (other than for religious practice/belief reasons). Especially when you put a "price" on donating. Such as stipulating that you only want a "good person or people" to have your organs. Or that as an adult only wants to give to children, which will make what you CAN give, very little.
Speaking of "setting a price" on Organ Donation. That is another misconception I caught on that Fan Page board. Some one (who rides motorcycles) said that he wouldn't want to donate, being that the DONOR family gets dumped with the cost of procurement, transporting of the organs and tissues, and for the RECIPIENT's surger(ies).
Again, a FALSE statement/myth/accusation. Nothing, and I mean *NOTHING* is charged to the Donor or their family for *any* part of the Transplant process. That all befalls to the RECIPIENT. Believe me, I know. Just for my cornea (not including harvesting, transportation, or transplantation) cost me $3,000.00. ME!....Not my donor or their family. It is against FEDERAL law to charge a single dime to the Donor or their loved ones being a donor or for the donation process.
So, I hope that for those of you that are still deciding to become an Organ/Tissue Donor, or for those of you that never really knew much about the process have read this and have taken something away (positive) about the TRUTH of being a Donor.
I truly believe that if more people were to self-educate (through reputable organizations, websites and through personal experiences of recipients) of exactly how Donation works, there would be MILLIONS more people willing to sign up to be a HERO.
Monday, May 10, 2010
I'm Me...Don't Expect More, You Won't Get But What I Can Give To The (Blogging) World.
After reading a friend's blog over at http://singedwingangel.blogspot.com/ by it's Author, Angel, I felt like I need to "explain" myself.
I have never been one, even as a little kid (but with rare exception, of course) to want what everyone else has, or to do what everyone else is doing. It's just not in my nature.
I'm the type that I "do my own thing" and I don't care what you think, either. Don't like it? Don't read it/watch it/be around it, I say. I'm not here to honestly please anyone (except my husband, my kids and ultimately, myself).
Have you noticed, I don't have "Bloggy Buttons", I don't do "Carnivals", I don't go out of my way to gain readers, I don't cater to people (unless I ask for topic ideas, which I have, and view as different from 'catering').
My readers come to me. Either by reading a post via Facebook, where it auto-posts my blog entries, by Networked Blogs application over at Facebook, by "word of mouth" via my readers I already have, or by my "Fan Page" I have for this blog page.
I'm not writing really to gain readers or popularity. I write to express myself, my views, my opinions, to share about my life as a mom/wife/Christian/parenting a Special Needs Child. Sometimes, I'm funny as all get out. Sometimes, I'm very serious. And at times, I can be both.
This blog is for ME. It's my outlet. My way of expression. My blog is not for a Popularity Contest, to see how many readers I can get to 'follow' me. Not to gain sympathy or a slew of comments. I like to educate others who may not know what it's like to parent a child with Mental Illness/Disorders/Disabilities. And to educate the populous in regards to Organ/Eye/Tissue Donation (I myself am a Donor, as well as a Corneal Transplant Recipient).
So, while my blog page may look "boring", being I don't have bunch of buttons, links to other bloggers, fancy page decorations and a "Nation's Populations in it's self" number of readers (that most don't even comment anyways), it's who I am...
Simple, comfortable, unpopular (nothing new there lol), and most of all...TRUE TO MYSELF and REAL (what you see on my page, posts and in between is who/what I REALLY am like in the REAL world).
If you want someone to "keep up with the Joneses" in bloggy circles and cliques, please do us both a favor, find another girl (or guy). Because this Blog Writer has too much else to do than keep up with the Joneses. I have a hard enough time keeping up with three kids, three cats, a husband, a two-story home (full basement) and life in general.
I have never been one, even as a little kid (but with rare exception, of course) to want what everyone else has, or to do what everyone else is doing. It's just not in my nature.
I'm the type that I "do my own thing" and I don't care what you think, either. Don't like it? Don't read it/watch it/be around it, I say. I'm not here to honestly please anyone (except my husband, my kids and ultimately, myself).
Have you noticed, I don't have "Bloggy Buttons", I don't do "Carnivals", I don't go out of my way to gain readers, I don't cater to people (unless I ask for topic ideas, which I have, and view as different from 'catering').
My readers come to me. Either by reading a post via Facebook, where it auto-posts my blog entries, by Networked Blogs application over at Facebook, by "word of mouth" via my readers I already have, or by my "Fan Page" I have for this blog page.
I'm not writing really to gain readers or popularity. I write to express myself, my views, my opinions, to share about my life as a mom/wife/Christian/parenting a Special Needs Child. Sometimes, I'm funny as all get out. Sometimes, I'm very serious. And at times, I can be both.
This blog is for ME. It's my outlet. My way of expression. My blog is not for a Popularity Contest, to see how many readers I can get to 'follow' me. Not to gain sympathy or a slew of comments. I like to educate others who may not know what it's like to parent a child with Mental Illness/Disorders/Disabilities. And to educate the populous in regards to Organ/Eye/Tissue Donation (I myself am a Donor, as well as a Corneal Transplant Recipient).
So, while my blog page may look "boring", being I don't have bunch of buttons, links to other bloggers, fancy page decorations and a "Nation's Populations in it's self" number of readers (that most don't even comment anyways), it's who I am...
Simple, comfortable, unpopular (nothing new there lol), and most of all...TRUE TO MYSELF and REAL (what you see on my page, posts and in between is who/what I REALLY am like in the REAL world).
If you want someone to "keep up with the Joneses" in bloggy circles and cliques, please do us both a favor, find another girl (or guy). Because this Blog Writer has too much else to do than keep up with the Joneses. I have a hard enough time keeping up with three kids, three cats, a husband, a two-story home (full basement) and life in general.
Saturday, May 1, 2010
My First Time.
Some say, when you have your first time, it can be really scary. You don't know what to expect, how to act or react. Or even what to feel at that very moment in time.
There are many firsts in our lives. First boyfriend or girlfriend. First dates and kisses. First time having sex. And then there is another first. One that thousands in the United States, and millions world wide get to have. Believe me, it is a first that no one wants to experience.
The loss of someone that for some people, they don't really even know on a "personal" level. But the shock, hurt, fear, and pain is still the same. Because in my exclusive club, when one hurts, we all hurt. When one rejoices, we all rejoice.
Sadly, there is no rejoicing for us in the Transplant Community in our Facebook tight-knit group, TEC. For one of our own is watching his wife dying before his very eyes. And there is NOTHING now that can be done for her.
She was in the process of testing to receive a Liver Transplant. She was even transferred to another hospital to start rehabilitation. But no sooner they got her there, she had to go back to her regular hospital and be placed in ICU. Sadly, she is now in Liver and Renal Failure. Her Kidneys have also basically shut down. Now, this vibrant, "young" woman is on full life support and around-the-clock dialysis.
Her family is coming in to say their good-bye's and at this point she is comfortable. By Monday, she will be taken off of life support and let nature take it's course, unless her heart stops before then.
This is a first for me. It is a stark, let alone grim reality of being in the Transplant World. None of us, be it Live Donors, Donor Families, or Recipients, I think honestly "get it" until something like this happens. We are in a "La La Land" of sorts. We all know that some get the call and are lucky. Some sadly don't. But until it REALLY "hits home" and happens to one of your own (so to speak), you can't honestly get a grasp on the severity of the realities of being in this (be it unwanted) exclusive club, where ALL ages are welcome, nor are they turned away. Transplantation has no age limits. Nor does Organ Failure.
Today, I await word on a friend's wife. He held out so much hope, gave her SO much love and devotion and was there for her from beginning to end, never wavering. He was giving positivity and hope to fellow new caregivers, even as he has had been getting his own heart shattering through seeing that there was nothing he could do but support and be there for the love of his life. And he is at this moment, by her side. Showing her his undying love, giving all the support he can as her soul-mate and just waiting for the end to sadly come.
We, his friends, have been loving them, supporting them and have hoped for the best. But sadly, the best came too late in the game. And for one woman, her journey through the Transplant Experience is almost over. Help was coming too late.
This "first" is something I will carry with me for years to come. And it's a "first" I knew would come along in my life. I just didn't think I would be blind sided with it this soon after becoming a Recipient myself. But I thank it for coming like it did. Why? Because now I can see the TRUE realities of the Transplant Community/World. It's not all a bed of sunshine, puppies and rainbows.
There is also darkness, heart break, sadness and death. In this "club", lives are at stake. We have to depend on another person, be it that they are alive or have died, to keep US alive, seeing and going on with our own lives. And to be here for our loved ones. That's a hard pill to have to swallow.
Some one had to DIE to give me my sight back. Some people depended on someone's death to be their second chance for a new heart or a new set of lungs. It's not easy knowing this fact. In some ways, some of us (myself included) felt like we "took" or "stolen" from our donors, in a selfish manner. But that is NOT the case.
Our donors gave of themselves to help those that are in need of a second chance at living their lives and being with their loved ones. Without them, we either would not be able to see, walk or even be alive ourselves.
There is so much more of a Demand, than there is a Supply for people in need of a Transplant. Be it a heart, a kidney, lungs, cornea, skin, and many other organs, tissues and even blood. Please, if you have yet to do so, SIGN UP to be an Organ/Eye/Tissue Donor. Be a HERO and pay it forward. You never know when YOU may depend on someone else for a second chance for the Gift of Life.
There are many firsts in our lives. First boyfriend or girlfriend. First dates and kisses. First time having sex. And then there is another first. One that thousands in the United States, and millions world wide get to have. Believe me, it is a first that no one wants to experience.
The loss of someone that for some people, they don't really even know on a "personal" level. But the shock, hurt, fear, and pain is still the same. Because in my exclusive club, when one hurts, we all hurt. When one rejoices, we all rejoice.
Sadly, there is no rejoicing for us in the Transplant Community in our Facebook tight-knit group, TEC. For one of our own is watching his wife dying before his very eyes. And there is NOTHING now that can be done for her.
She was in the process of testing to receive a Liver Transplant. She was even transferred to another hospital to start rehabilitation. But no sooner they got her there, she had to go back to her regular hospital and be placed in ICU. Sadly, she is now in Liver and Renal Failure. Her Kidneys have also basically shut down. Now, this vibrant, "young" woman is on full life support and around-the-clock dialysis.
Her family is coming in to say their good-bye's and at this point she is comfortable. By Monday, she will be taken off of life support and let nature take it's course, unless her heart stops before then.
This is a first for me. It is a stark, let alone grim reality of being in the Transplant World. None of us, be it Live Donors, Donor Families, or Recipients, I think honestly "get it" until something like this happens. We are in a "La La Land" of sorts. We all know that some get the call and are lucky. Some sadly don't. But until it REALLY "hits home" and happens to one of your own (so to speak), you can't honestly get a grasp on the severity of the realities of being in this (be it unwanted) exclusive club, where ALL ages are welcome, nor are they turned away. Transplantation has no age limits. Nor does Organ Failure.
Today, I await word on a friend's wife. He held out so much hope, gave her SO much love and devotion and was there for her from beginning to end, never wavering. He was giving positivity and hope to fellow new caregivers, even as he has had been getting his own heart shattering through seeing that there was nothing he could do but support and be there for the love of his life. And he is at this moment, by her side. Showing her his undying love, giving all the support he can as her soul-mate and just waiting for the end to sadly come.
We, his friends, have been loving them, supporting them and have hoped for the best. But sadly, the best came too late in the game. And for one woman, her journey through the Transplant Experience is almost over. Help was coming too late.
This "first" is something I will carry with me for years to come. And it's a "first" I knew would come along in my life. I just didn't think I would be blind sided with it this soon after becoming a Recipient myself. But I thank it for coming like it did. Why? Because now I can see the TRUE realities of the Transplant Community/World. It's not all a bed of sunshine, puppies and rainbows.
There is also darkness, heart break, sadness and death. In this "club", lives are at stake. We have to depend on another person, be it that they are alive or have died, to keep US alive, seeing and going on with our own lives. And to be here for our loved ones. That's a hard pill to have to swallow.
Some one had to DIE to give me my sight back. Some people depended on someone's death to be their second chance for a new heart or a new set of lungs. It's not easy knowing this fact. In some ways, some of us (myself included) felt like we "took" or "stolen" from our donors, in a selfish manner. But that is NOT the case.
Our donors gave of themselves to help those that are in need of a second chance at living their lives and being with their loved ones. Without them, we either would not be able to see, walk or even be alive ourselves.
There is so much more of a Demand, than there is a Supply for people in need of a Transplant. Be it a heart, a kidney, lungs, cornea, skin, and many other organs, tissues and even blood. Please, if you have yet to do so, SIGN UP to be an Organ/Eye/Tissue Donor. Be a HERO and pay it forward. You never know when YOU may depend on someone else for a second chance for the Gift of Life.
Thursday, April 1, 2010
April is for more than Easter. It's to Give Life, Give Hope....
Life. What a precious thing to have, isn't it? Most of us take it and all of it's gifts for granted. That is until something major happens and it makes you take a better look at that proverbial big picture.
That is how it is for over 100,000 people in the United States of America alone. Add in people all over the world, and you are looking at MILLIONS of men, women and children. Holding on to every single day as if it really is their last. Hoping for that one second chance.
Waiting for someone to give of themselves. Waiting....for a new organ, tissue, bone, or bone marrow.
Some will sadly die waiting for their turn. Some have been waiting only a few weeks. Some, a few months. And some have been forced to wait for YEARS to get "the call" to receive the Gift of Life.
During the entire month of April, those of us that have been touched by Organ/Tissue/Bone/Marrow Donation are celebrating Organ, Tissue Donation Awareness Month.
People that have been are a Recipient, a Living Donor, is a Donor Family, or a friend of someone who donated or received an organ/tissue/bone/marrow are banding together to spread the awareness of the need GLOBALLY, all around the world for people to SIGN UP 2 SAVE LIVES with their local Organ/Tissue Donation center.
Be it the Department of Motor Vehicles (DMV), on a website such as www.donatelife.net/CommitToDonation, or Google-ing for International Organ/Tissue Donation Registration websites.
When you sign up to be an Organ/Tissue Donor, you are saying that you are willing to freely give someone else, after your death, a second chance to live on.
For me, it was a Cornea for my eye. That is the "outside window" that protects your inner eye from injury and enviromental infections that could otherwise sneak in directly and attack the eye its self.
Without my Donor's gift of sight, I would be COMPLETELY blind in my left eye. As a Stay-At-Home-Mom that was NOT an option. I wanted to see with BOTH eyes, my three young children grow, be able to keep BOTH eyes on them, be able to SAFELY cross a busy street and have more of my independence back.
If you sign up to be a Donor, you are a HERO! To not only the Recipient. But, to their family and their loved ones. We ♥ our Donors and their families EVERY day. They are NEVER far from our thoughts, hearts, and appreciation.
Please, take a few minutes out of your time today to sign up to be an Organ/Tissue Donor. It's free, quick, and simple. Let someone have a full life and a second chance.
http://www.donatelife.net/ http://www.organdonor.gov/ http://www.unos.org/
That is how it is for over 100,000 people in the United States of America alone. Add in people all over the world, and you are looking at MILLIONS of men, women and children. Holding on to every single day as if it really is their last. Hoping for that one second chance.
Waiting for someone to give of themselves. Waiting....for a new organ, tissue, bone, or bone marrow.
Some will sadly die waiting for their turn. Some have been waiting only a few weeks. Some, a few months. And some have been forced to wait for YEARS to get "the call" to receive the Gift of Life.
During the entire month of April, those of us that have been touched by Organ/Tissue/Bone/Marrow Donation are celebrating Organ, Tissue Donation Awareness Month.
People that have been are a Recipient, a Living Donor, is a Donor Family, or a friend of someone who donated or received an organ/tissue/bone/marrow are banding together to spread the awareness of the need GLOBALLY, all around the world for people to SIGN UP 2 SAVE LIVES with their local Organ/Tissue Donation center.
Be it the Department of Motor Vehicles (DMV), on a website such as www.donatelife.net/CommitToDonation, or Google-ing for International Organ/Tissue Donation Registration websites.
When you sign up to be an Organ/Tissue Donor, you are saying that you are willing to freely give someone else, after your death, a second chance to live on.
For me, it was a Cornea for my eye. That is the "outside window" that protects your inner eye from injury and enviromental infections that could otherwise sneak in directly and attack the eye its self.
Without my Donor's gift of sight, I would be COMPLETELY blind in my left eye. As a Stay-At-Home-Mom that was NOT an option. I wanted to see with BOTH eyes, my three young children grow, be able to keep BOTH eyes on them, be able to SAFELY cross a busy street and have more of my independence back.
If you sign up to be a Donor, you are a HERO! To not only the Recipient. But, to their family and their loved ones. We ♥ our Donors and their families EVERY day. They are NEVER far from our thoughts, hearts, and appreciation.
Please, take a few minutes out of your time today to sign up to be an Organ/Tissue Donor. It's free, quick, and simple. Let someone have a full life and a second chance.
http://www.donatelife.net/ http://www.organdonor.gov/ http://www.unos.org/
Saturday, March 13, 2010
Copy of letter to DONATE LIFE AMERICA re: my story of being a Cornea Recipient
For much of my adult life, I have been battling what I thought to be "teen acne". That was until the morning of October 21,2009. That's when I perforated my Cornea after poking it with my finger knuckle as I scratched an itch on my eyebrow, and my finger slipped.
On October 24th, I was sent to Duke University Medical Center and learned that I in fact had the skin condition, Rosacea. This is called Ocular Rosacea. It was in my eyes as well. And as a result, the Cornea thinned with each flare-up.
On October 29th, I was rushed back to Duke for an emergency Corneal Transplant. The Gluing procedure that was used to wait out the infection didn't work.
Thanks to my Donor, their courageous gift, and his/her family, I was able to regain my sight. At least a tiny bit. It's going to take a great amount of time (about a year or so) for all of my vision to return.
But this married, Stay-At-Home Mom of three children (ages 10 years to 5 years) is forever grateful to the doctors, her Donor, Donor Family and the North Carolina Eye Bank for the gift of sight. Without them and my family's support, I very well could be blind for the rest of my life (or even without an actual eye).
That Cornea Donation saved my Cornea, the eye it's self, and my life as I've come to "know" it.
Please give to others. Be a Donor and give someone the chance at a better, healthier, and happier life.
I myself am an Organ/Tissue/Eye Donor. If you are going to "take", it's always a good thing to also "give".
Melissa, State of Virginia
On October 24th, I was sent to Duke University Medical Center and learned that I in fact had the skin condition, Rosacea. This is called Ocular Rosacea. It was in my eyes as well. And as a result, the Cornea thinned with each flare-up.
On October 29th, I was rushed back to Duke for an emergency Corneal Transplant. The Gluing procedure that was used to wait out the infection didn't work.
Thanks to my Donor, their courageous gift, and his/her family, I was able to regain my sight. At least a tiny bit. It's going to take a great amount of time (about a year or so) for all of my vision to return.
But this married, Stay-At-Home Mom of three children (ages 10 years to 5 years) is forever grateful to the doctors, her Donor, Donor Family and the North Carolina Eye Bank for the gift of sight. Without them and my family's support, I very well could be blind for the rest of my life (or even without an actual eye).
That Cornea Donation saved my Cornea, the eye it's self, and my life as I've come to "know" it.
Please give to others. Be a Donor and give someone the chance at a better, healthier, and happier life.
I myself am an Organ/Tissue/Eye Donor. If you are going to "take", it's always a good thing to also "give".
Melissa, State of Virginia
Friday, March 12, 2010
Come, join us at... The Transplant Experience Community (TEC) group on Facebook...
It's a safe haven. It is a place of support and understanding.
Thanks to Rex and Linda Maus, those of us that are facing a transplant, have had a transplant, were a Living Donor, or we are a family member of a Donor, have a place to run to. To call home.
That place is The Transplant Experience Community (TEC) group over on Facebook.
We have all various types of groups of transplant members there. Liver. Kidney. Bone. Heart. Lung. And even Cornea.
There are forum threads in the discussions area for each transplant group. There is a "Prayer Corner". We also provide a place to vent about the after affects of the surgeries.
As not only a member of this wonderful community....no, FAMILY, but as an Administrator in the group as well, I can personally say that I have never felt so close to "strangers" over a computer as I do with my fellow members in TEC.
We laugh together. We cry together. We share our hopes, our dreams, and our fears with one another. There is real love in the group. It illuminates all around within the group's walls.
If you or a loved one, be it a sister, brother, mother or father, a friend or co-worker is in need of a transplant, has had a transplant, or you wish to know more about Organ/Tissue Donation, please feel free to join us at The Transplant Experience Community. We are waiting for you with open and accepting arms.
The Transplant Experience TEC
Thanks to Rex and Linda Maus, those of us that are facing a transplant, have had a transplant, were a Living Donor, or we are a family member of a Donor, have a place to run to. To call home.
That place is The Transplant Experience Community (TEC) group over on Facebook.
We have all various types of groups of transplant members there. Liver. Kidney. Bone. Heart. Lung. And even Cornea.
There are forum threads in the discussions area for each transplant group. There is a "Prayer Corner". We also provide a place to vent about the after affects of the surgeries.
As not only a member of this wonderful community....no, FAMILY, but as an Administrator in the group as well, I can personally say that I have never felt so close to "strangers" over a computer as I do with my fellow members in TEC.
We laugh together. We cry together. We share our hopes, our dreams, and our fears with one another. There is real love in the group. It illuminates all around within the group's walls.
If you or a loved one, be it a sister, brother, mother or father, a friend or co-worker is in need of a transplant, has had a transplant, or you wish to know more about Organ/Tissue Donation, please feel free to join us at The Transplant Experience Community. We are waiting for you with open and accepting arms.
The Transplant Experience TEC
Monday, February 8, 2010
The Transplant Experience Community (TEC) group on Facebook...
It's a safe haven. It is a place of support and understanding.
Thanks to Rex and Linda Maus, those of us that are facing a transplant, have had a transplant, were a Living Donor, or we are a family member of a Donor, have a place to run to. To call home.
That place is The Transplant Experience Community (TEC) group over on Facebook.
We have all various types of groups of transplant members there. Liver. Kidney. Bone. Heart. Lung. And even Cornea.
There are forum threads in the discussions area for each transplant group. There is a "Prayer Corner". We also provide a place to vent about the after affects of the surgeries.
As not only a member of this wonderful community....no, FAMILY, but as an Administrator in the group as well, I can personally say that I have never felt so close to "strangers" over a computer as I do with my fellow members in TEC.
We laugh together. We cry together. We share our hopes, our dreams, and our fears with one another. There is real love in the group. It illuminates all around within the group's walls.
If you or a loved one, be it a sister, brother, mother or father, a friend or co-worker is in need of a transplant, has had a transplant, or you wish to know more about Organ/Tissue Donation, please feel free to join us at The Transplant Experience Community. We are waiting for you with open and accepting arms.
The Transplant Experience TEC
Thanks to Rex and Linda Maus, those of us that are facing a transplant, have had a transplant, were a Living Donor, or we are a family member of a Donor, have a place to run to. To call home.
That place is The Transplant Experience Community (TEC) group over on Facebook.
We have all various types of groups of transplant members there. Liver. Kidney. Bone. Heart. Lung. And even Cornea.
There are forum threads in the discussions area for each transplant group. There is a "Prayer Corner". We also provide a place to vent about the after affects of the surgeries.
As not only a member of this wonderful community....no, FAMILY, but as an Administrator in the group as well, I can personally say that I have never felt so close to "strangers" over a computer as I do with my fellow members in TEC.
We laugh together. We cry together. We share our hopes, our dreams, and our fears with one another. There is real love in the group. It illuminates all around within the group's walls.
If you or a loved one, be it a sister, brother, mother or father, a friend or co-worker is in need of a transplant, has had a transplant, or you wish to know more about Organ/Tissue Donation, please feel free to join us at The Transplant Experience Community. We are waiting for you with open and accepting arms.
The Transplant Experience TEC
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