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Showing posts with label donation. Show all posts
Showing posts with label donation. Show all posts

Saturday, December 10, 2011

I Love My So-Called "Job"!

I get no (monetary) pay. I get no medical benefits. I get no "vacation pay" or "Holiday pay". I have been "promoted", though since the beginning of the year.

I'm a Volunteer! And I am also the Assistant Volunteer Coordinator for my children's Elementary School.

And I love EVERY single moment of it. Even though it can be tiring, and at times, overwhelming.

Take this past week. We have held a "Holiday Boutique" for the kids. From Pre-K, all the way up through the Fifth Grade classes. We sold things from just twenty-five cent items, up to no more than ONE dollar.

Many of our kids have family (including us, somewhat again) that are struggling just to buy their children presents for Christmas and Hanukkah. And knowing kids, they want to buy for Grandma, Mom, siblings and even their friends. But can't due to the financial strains.

So, thanks to the PTO Board, and one really awesome mom I know of, and that I worked closely with to pull it all together, we opened the "Holiday Boutique" for two days. And the kids went NUTS (in a good way) about buying for their loved ones.

And because of the two-day event being such a success, and pulling in OVER $500 in EIGHT HOURS time (between the two days), we have decided (after I said I'd be willing to do so, and got the approval from the boss lady... AKA the Principal) that we will be open for ONE more day to purchase donated goods (via the teachers, other staff and some of the parents, including yours truly).

To see these kids come in, smiling from ear-to-ear, knowing that they CAN buy things for those that they love and care about, and being SO excited to hand over the money for their purchase, it IS MY version of "being paid".

As well as the "thanks for helping me", "thanks for letting me get this for my mom/dad/whomever", the hugs and just seeing their day being a little brighter. That is all worth so much more than the almighty dollar being given to me for all that I have done, do, and will do for that school and those kids.

Thanks to all of the parents that have donated or even have helped me with the actual sale days. Thanks to all of the teachers and other faculty of the school for helping with giving donations.

And a huge thanks to "my" kids who have made every bit of stress, every ache and pain and every trip to the school's office to hand over money (LOTS of times lol) worth it. Your excitement and smiles made every second worth it all.

Sunday, November 27, 2011

Christmas Shopping = ...Being Greedy Bastards (??)

Originally, I had posted the following on my FaceBook page as a "Note". But I think it needs to really go further than just to my friends on my "Friends List".

Let's just say that I am tired of seeing people lump everyone in to one huge category when it comes to having the "Christmas Shoppers spirit" and are then viewed as materialistic assholes who don't give a rat's ass about their fellow man, woman or child.

What I had initially said was...

I'm just going to put this out there, knowing I may tick some off...

Yes, my children made wish lists for Christmas. Heck, even this year, Mom and Dad are joining in the list-making fun ourselves.

We are NOT materialistic people. We are not all about money and things. Not that having those is a bad thing, per say. And I commend those that are strong on their stance about helping the needy.

But it does peeve me off a bit when you have a bit of a crap-tastic attitude about people shopping for the Holiday, and seemingly "auto-assuming" that we don't give to those less fortunate. In what seems to be every post about donating items to help people.

We have been in a spot where we required help to get our children things for Christmas. If it weren't for Salvation Army, the Angel Tree organization, Toys For Tots and a couple of churches, my children would have basically had NOTHING under the tree.

MOST of us that some people have bashed and downgraded over buying gifts in fact DO buy for and donate things like toiletries, food, clothing, books and toys.

Are there some people in this world that don't give two craps about those in need? YEP. But there are way less of them, and oh-so-many-more of US THAT *DO* care about those that are hurting for food and clothing to keep warm this winter.

So, please, when you are asking people to have a heart and donate to a charity, be it with time, money or items, don't make it sound like we are some horrible, heartless excuses for human beings. When you add insults to your passionate desire to help others, it makes people NOT want to help.

Just some food for thought...

And a quick FYI... My family (myself, my husband, and our kids) DO in fact donate to the Salvation Army's Angel Tree organization, as well as drop money as we can in to their donation buckets.

Now, to ready for Christmas shopping tomorrow.

Sunday, April 3, 2011

Distorting the FACTS from the MYTHS About Organ/Tissue/Eye Donation

The following are the Myths and the Facts about being or becoming an Organ/Tissue/Eye Donor.

Information (copy/pasted) is provided by the Mayo Clinic.

Myth: If I agree to donate my organs, the hospital staff won't work as hard to save my life.

Fact: When you go to the hospital for treatment, doctors focus on saving your life — not somebody else's. You'll be seen by a doctor whose specialty most closely matches your particular emergency. The doctor in charge of your care has nothing to do with transplantation.
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Myth: Maybe I won't really be dead when they sign my death certificate.

Fact: Although it's a popular topic in the tabloids, in reality, people don't start to wiggle their toes after they're declared dead. In fact, people who have agreed to organ donation are given more tests (at no charge to their families) to determine that they're truly dead than are those who haven't agreed to organ donation.
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Myth: Organ donation is against my religion.

Fact: Organ donation is consistent with the beliefs of most religions. This includes Catholicism, Protestantism, Islam and most branches of Judaism. If you're unsure of or uncomfortable with your faith's position on donation, ask a member of your clergy. Another option is to check the federal Web site OrganDonor.gov, which provides religious views on organ donation and transplantation by denomination.
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Myth: I'm under age 18. I'm too young to make this decision.

Fact: That's true, in a legal sense. But your parents can authorize this decision. You can express to your parents your wish to donate, and your parents can give their consent knowing that it's what you wanted. Children, too, are in need of organ transplants, and they usually need organs smaller than those an adult can provide.
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Myth: An open-casket funeral isn't an option for people who have donated organs or tissues.

Fact: Organ and tissue donation doesn't interfere with having an open-casket funeral. The donor's body is clothed for burial, so there are no visible signs of organ or tissue donation. For bone donation, a rod is inserted where bone is removed. With skin donation, a very thin layer of skin similar to a sunburn peel is taken from the donor's back. Because the donor is clothed and lying on his or her back in the casket, no one can see any difference.
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Myth: I'm too old to donate. Nobody would want my organs.

Fact: There's no defined cutoff age for donating organs. Organs have been successfully transplanted from donors in their 70s and 80s. The decision to use your organs is based on strict medical criteria, not age. Don't disqualify yourself prematurely. Let the doctors decide at your time of death whether your organs and tissues are suitable for transplantation.
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Myth: I'm not in the best of health. Nobody would want my organs or tissues.

Fact: Very few medical conditions automatically disqualify you from donating organs. The decision to use an organ is based on strict medical criteria. It may turn out that certain organs are not suitable for transplantation, but other organs and tissues may be fine. Don't disqualify yourself prematurely. Only medical professionals at the time of your death can determine whether your organs are suitable for transplantation.
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Myth: I'd like to donate one of my kidneys now, but I wouldn't be allowed to do that unless one of my family members is in need.

Fact: While that used to be the case, it isn't any longer. Whether it's a distant family member, friend or complete stranger you want to help, you can donate a kidney through certain transplant centers. If you decide to become a living donor, you will undergo extensive questioning to ensure that you are aware of the risks and that your decision to donate isn't based on financial gain. You will also undergo testing to determine if your kidneys are in good shape and whether you can live a healthy life with just one kidney.
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Myth: Rich and famous people go to the top of the list when they need a donor organ.

Fact: The rich and famous aren't given priority when it comes to allocating organs. It may seem that way because of the amount of publicity generated when celebrities receive a transplant, but they are treated no differently from anyone else. In fact, the United Network for Organ Sharing (UNOS), the organization responsible for maintaining the national organ transplant network, subjects all celebrity transplants to an internal audit to make sure the organ allocation was appropriate.
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Myth: My family will be charged if I donate my organs.

Fact: The organ donor's family is never charged for donating. The family is charged for the cost of all final efforts to save your life, and those costs are sometimes misinterpreted as costs related to organ donation. Costs for organ removal go to the transplant recipient.

Saturday, April 2, 2011

Donation... Give the gift of Smiles & of Yourself.

A while back, I had written a post about an experience that took myself and my husband by surprise. We knew that when the time was right, we were going to pass on the gift of giving to someone. We have since been on the lookout of who and how we were going to "Pay It Forward" to.

This is a concept I already had in mind for myself though, since I had turned the age of eighteen. Since then, I have been a Registered Donor to donate anything I can in the event of my death.

Who knew that at the age of thirty-two, just fourteen years after becoming a Donor, that I also would be seeing the whole topic of Organ/Tissue Donation from the other side of the fence. You can read my Corneal Transplant Recipient story HERE.

But also, I have been able to "pay it forward" monetarily. And thanks to the donations that were all pooled together, a record twenty-five children were able to purchase books at the Spring Book Fair at school.

Hayley had found a $100 bill in the school's soccer field a while back and brought it home. Sure I got on her for not turning it in right away. But then, I myself constantly forgot to take it with me to turn in as well.

So, seeing as so much time has passed, we (Scott and I collectively) decided to donate the $100 to the school's Library for the Book Fair's "Students in Need" box. After the totals were counted, there was close to $190.00 to split between the kids. Pre-K through Fist grade students were able to spend up to $5 and those in Second through Fifth grade were able to spend up to $10.

It felt wonderful to see the long list and know that so many children were being helped this year. I'm NOT happy that they had to be on it, because of such financial hardships in their families. But I AM happy that these kids were able to continue on the path to a wonderful love and enjoyment of reading.

Although, there is something else, along with the love of reading that is very close to my heart. That is Organ/Tissue Donation Awareness. Not just because I am a Registered Donor, as is my husband. But because we as a family have experienced firsthand the miracles of Tissue Donation. To be able to regain (most of) my sight back is an honest miracle. And as a mother, being down just ONE eye is hard to deal with. No matter how much you do to "adapt".

Did you know that you can be a LIVING Donor? Blood, a piece of your liver, a kidney, bone marrow, tendons and other tissues.

Then, you have Donors that donate skin, corneas, major organs such as your hearts and lungs. Plus cadaver (deceased) donors can give their tissues, bones, livers, kidneys, and intestines.

Right now, in the United States of America, the statistics for Recipients CURRENTLY awaiting their "gifts of LIFE" stands at (provided by Organ Procurement & Transplant Network)..

All Organs 110,484
Kidney 88,087
Liver 16,164
Pancreas 1,384
Heart 3,188
Lung 1,758
Intestine 265

As a Registered Donor, you can potentially save up to eight people's lives, and enrich and better about 50 lives.

Giving has always been a part of me and of who I am. I give what I can, where I can, when I can. So signing up to be an Organ/Eye/Tissue Donor was a no-brainer for me. If you are interested in becoming a Donor, please visit OrganDonor.Gov or United Network for Organ Sharing (UNOS) and find out more Organ Transplantation and becoming a HERO, and to find out how to register in your state or Provence.

Because to us, our Donors (living and deceased), and their families are indeed our HEROES!

Saturday, February 26, 2011

In Transplant News This Past Week...

This past week has been filled with appalling headlines. Both of which I'd known about earlier on. But one thing has become "official", whereas the other news of noting is still "in the works". In the end, both stories go against ethics of humanity and ethics within the Transplant world.

First of all, let's talk about the (ahem) 'lovely' Janet Brewer, Governor of Arizona and her cuts that SHE passed in to affect.

I'd written a piece about her and what her plans were a while back in regards to those that are waiting on organs and are served by the state's Medicaid Assistance. To read that post, CLICK HERE.

Now, these "Death Panels" have been officially put in to place. The cards are all laid out. And HUNDREDS of Arizona citizens that are waiting on a LIFE SAVING organ transplant will NOT live long enough to get it.

Why? Because the worst of the worst will be removed from the Waiting List, and are on Medicaid Assistance in the state of Arizona.

Governor Brewer signed in to affect, budget cuts to "save money" in her state. One of those slashes were to Medicaid. And primarily those waiting on an Organ Transplant.

To read the latest article on it, CLICK HERE. This is an older article, yes, But now Janet Brewer has set in to motion, a wave of death.

Now, as for the other article that has been capturing my attention, and has for some time now, as the story has been unfolding is the story of the two sisters from Mississippi who were sentenced to LIFE in prison for their crimes, but were RELEASED after serving sixteen years, on ONE condition... That one sister IS to donate a kidney to the other, who's own kidney is failing.

Apparently, the judge that ordered this "new sentence" is not very well versed in the rules, regulations, ethics and overall practices of Organ Donation. Because if the idiot was, he would KNOW that to FORCE anyone to be an organ donor (especially when it's NOT known at the time if indeed the sisters are an actual match) is considered unlawful and goes against EVERYTHING that UNOS (United Network for Organ Sharing) stands for and has laid out as the procedures to give and receive organs.

To read the article in reference to the criminal sisters who got off on a strange "technicality", CLICK HERE.

They were ALLOWED to move out of state (which normally is a no-no with Probation). But the transplant cannot take place until they BOTH lose weight. And hey, they get a PERSONAL TRAINER for that, and Gastric Bypass Surgery. Then of course, the Organ Transplant Surgery.

Like the doctors, I'd REALLY love to know WHO is going to pay for this? It's obvious that neither of them have medical insurance. And by my understanding of practice, the patient MUST have some kind of medical insurance to be approved as a Recipient.

Plus the Judge who ordered this weird release states that the transplant MUST happen within a year, or (hypothetically) they will be sent BACK to prison. WTF?? I say that they should have NEVER left on these types of terms.

Maybe I should have been imprisoned BEFORE my transplant that I had for my eye. Then all MY bills would be paid FOR me. Instead, I have pretty good insurance, but still stuck with on-going bills for the REST OF MY LIFE for the transplant its self and for the lifelong, on-going care I will need (and possibly ANOTHER Corneal Transplant down the road). Because apparently, it PAYS to be in prison these days, instead of a "punishment".

Monday, December 6, 2010

25 Days of Christmas (Day 6)

I'm sure that like us in my home, you are in the midst of tree trimming, hanging wall decor, trading out your everyday "breakables" with those with a Christmas-like theme and preparing your festive meal plans. Then add in all that gift buying and ensuring that all of your Holiday Cards are written, stamped and ready to hand out or mail to those you hold dear.

But wait! What about those that have no tree? Those that have no money or means to have a good meal? And those that cannot buy ANYTHING for even their own child?

What can YOU do to make a difference? Even in just one child's or senior's life this Christmas season. The season of giving, loving and good will towards others.

Let's see here...

You can donate toys and clothing (new) to the Salvation Army's Angel Tree.

ANGEL TREE INFO

Or you can donate NEW toys to Toys For Tots.(Ran by the Marine Corp)

TOYS FOR TOTS INFO

You can even donate GENTLY used toys, books and clothing to your local Goodwill Center, where people can still buy items, but at a very affordable price.

GOODWILL DONATION INFO

If you wish to donate food items, that is WONDERFUL as well. Many stores in your area are currently holding Food Drives. Kroger, WalMart, Target, Food Lion..just to name a few. Call your local retail grocer of your liking and ask what they are doing and how to donate to their Donation Station.

You could even donate food to your local charity centers and/or Food Bank.

FEEDING AMERICA

FOOD BANK FOR NEEDY *PETS* (They need to eat too!)

Wish to actually donate TIME this year? Why not volunteer in a local Soup Kitchen this Christmas?

NATIONAL FOOD BANK ORG LISTINGS

NATIONAL REGISTRY THAT'S LESS CONFUSING

As far as donations go, other than Goodwill, if you wish to not go national, and KNOW for certain that your contribution is staying local and to those in REAL need, I suggest going through your church or synagogue. Especially at this time of year, most churches and synagogues set up donation stations in their foyers to help fellow members and parishioners (in a confidential means, of course) where all donations stay within the place of worship (and distributed only to members deemed in need of assistance).

I've done my part, as have my kids (Angel Tree..Day 3). Now it's your turn.

Yes, I am CHALLENGING everyone that reads this post to GO OUT and to HELP others in need. Be it volunteering time, your money, buying food for a food pantry/bank/drive, or to donate a NEW toy and/or clothes to a child that may have NOTHING under the tree this year without YOUR help.

Everyone needs a little light in their lives. Will you be their beacon? No child (or senior, or even pets) deserve to not have a touch of happiness in the cold months.

Friday, December 3, 2010

25 Days of Christmas (Day 3)


"The Spirit Of Giving vs. Receiving From Others" is what I have chosen for today.


As most of my readers know, just over a year ago, I required an emergency Corneal Transplant. I was needing it at some point. But thanks to complications I went from preparing to "do it now or else" within less than a week.

Since I was eighteen, I have been a Registered Organ/Tissue Donor. I've always been the type of person that took more joy in GIVING to others than I did with taking. It's been this way since I can remember.

Also, for the last three Christmases past, my husband and I had to swallow our pride and apply for assistance for the kids through the Salvation Army's 'Angel Tree' program that has generous people and families donate presents to needy children.

This year, we have turned a tide and did not apply this year. Some may call up nuts because my son being on SSI Disability automatically qualifies him and his sisters. But I am not, nor have I ever been the one to profit from another's suffering. Even if it meant a better Christmas for my children.

This year, with my children all now being at ages and levels of understanding in regards to helping others, we have decided to give back. On our way out to let the kids shop for one another, we stopped by the mall and found the local Angel Tree for our area.

Each of my kids were allowed to pick a child of their choosing. They all got kids off the tree of their gender and age range (though Skyler had to do a five-year-old, seeing as six was no longer there).

The first ones that they wanted to shop for after we "busted" through the store's doors was get the gifts for their chosen kids. In that moment as their mom, I could not have been more proud. They put OTHERS above themselves and thought of helping another human being BEFORE thinking of THEIR wants.

Each of their kids got a set of clothing and a toy (or make-up) that they made the final decision on (as long as it was within our price range).

After that, then the girls got to shop for their gifts to Bryce as he and I sat in the van. Then, it was vice versa.

Next, the girls have to get one another (seeing as it was getting late and too cold to be out). And knowing my three, separately, Scotty and I will be having to take them all as to be able to shop for us (Mom and Dad) like we do every year.

In the end though, this year, I have seen with my own eyes that the values I have tried hard to instill in to my children are indeed paying off. And it's getting paid forward.

Because this Christmas, three more children in this world WILL have *something* under their Christmas tree. All because three of their peers decided it was better to give than to get.

Saturday, October 30, 2010

One Year and Counting

Yesterday was filled with a lot of laughter, smiles and fun. But deep down, I knew exactly what the day was all about. Some of it, sad. While, for the most part, good.

I'd spent the entire school day in my youngest daughter's Kindergarten class. We carved real pumpkins in "teams". Then we did a ton of different crafts. Including my 'Jack-O-Lantern Jug' that they have an option to use as a candy collection jug for Trick-Or-Treating.

After trying to think of something to do to commemorate the special meaning of October 29th as being the Transplant Anniversary since having my new Cornea placed in, helping me to once more see, and even be able to keep the whole eye that at this time last year was ravaged with infection to the point is nearly impossible to save it, I think I found my way of honoring my Donor, their family and the significance of the day.

I had fun. I smiled. I played with the wonderful children I help every week in the classroom. I even danced with the kids at the Halloween Dance that was put on for them after school. I lived life as I always have. As a survivor of the hurdles I have had to face, and as the mother I was before my sight in the left eye was robbed, thanks to infection and an accident.

As I sit here and think back about the past week, I honestly cannot think of a better way to thank and honor such a gift, or the Donor that gave of themselves. To live my life. Be happy. To be the mother that I was meant to be to my children. To be the wife I have striven to be for my husband for the past eight years of our marriage. To be the friend that I have always been or have to tried to have been to others.

My donor gave me what was robbed of me in a matter of seconds. Even though apparently, the damage was already severely done over the prior months before. But it took just one accidental poke with my own knuckle to complete what the infection set out to do. To take away my sight completely from my left eye.

Almost a month later, my Donor gave me their cornea, thanks to their loving gift at the end of their life, and to sheer luck that one was readily available to fit my needs.

At first, it killed me inside to know that I had to have someone die to let me live my life as I have always known. I had "Survivor's Guilt". Especially when Thanksgiving and Christmas came around. I knew that as I sat down to dinner and opening gifts, another family was sitting around grieving and wishing that their loved one was still here to enjoy life and the holidays with.

Now that the year has come along, and I am pretty much back to normal like before all of this had happened, I no longer try to think about things in a "sad way". I know deep within my heart, my Donor is happy with my getting back on with life and enjoying being a wife and a mother.

They gave me my life back. And for that, I will FOREVER be grateful. To them, and to their family. And I have realized, at least for me personally, the best way to honor them, not just on October 29th, but EVERY single day of the year, is to just live my life to the fullest capacity, smile as much as I can, and know that THEY TO know just how thankful that I am of the gift that they bravely and heroically gave to me.

Monday, September 27, 2010

So Many Thoughts Come to Mind...Ponderings On a Rainy Day.

In one month and two days from today, it will be a milestone. And a lot of different meanings.

For one, my childhood friend, Lisa's birthday is on October 29th. We just recently reconnected, thanks to FaceBook, after almost 25 years of dropping off the earth to one another. Then, soon followed by her three sisters, Neva, Dana and Rena.

Then, add in the fact that it will be 21 years since my mother's passing. Over the years it has gotten much better to take in and deal with. I know she will always be with me in my heart and in my memories (what few I have left of her and our time together).

The biggest milestone to come on October 29th though is...

It will be my one-year anniversary since my Cornea Transplant. While I'm happy to have the sight that I DO have in it now, compared to before the surgery (and the fact that I have a cornea), it will also be a day of mourning.

Yes, we recipients DO mourn the passing of those which have given us our second chances. We never (in most cases) were able to meet them in life. And a rare few of us get to meet the families that are mourning the loss of their loved one that donated to us. But we are very thankful and grateful, none the less. And it hurts us to know that another family is out there, somewhere, hurting and are not able to have the time with their family any longer, as we recipients share in the joys, trials and tribulations of our families.

It's on days like this, where it's damp, chilly and rainy, that I sit and wonder. What if my mother were still alive? How would she have felt of my moving across to the other side of the states? How would she think of my husband? What nicknames would she have given her grandchildren?...Would I have still had that stupid trache until I turned 18?

I also wonder who my donor was. What is their gender? How old were they? What were their likes and dislikes? Was their family life filled with love and laughter?

So many thoughts to ponder as I sit here, sipping my coffee and listening to the stillness of the house, as the rain beats down and the cars are passing by on slick roads.

Sunday, August 29, 2010

Gone, but was never forgotten. Eight years later...

I'm not going to rant, spout off on anything, or joke around. Today is a solemn day. Because reality had set in. With a look at one piece of paper and a package.

Sure, over on Facebook, I was all jokes and laughs. I think it was my way of dealing with what was about to come to my door, and back in to my life. Now, it is here. And the jokes have since stopped. Reflection has taken its place.

I finally got my grandmother's ashes. Eight years after her passing. She arrived here from Nevada on her birthday (8/26) & I missed her.

Then, they tried to deliver her on her Death Anniversary (8/27). I finally got her from the USPO yesterday.

After getting the box open, and pulling her cremains box out, Scott found an envelope with a copy of her Transport-Burial certificate (also served partially as a death cert.).

It was then, as I had seen the DOD, and the place she died, that I finally broke down, as I carried her to the place I want her to be (for now). I had the flash of those last 2 days before her death hit me. And I was mourning her all over again. Even if it was just for a brief moment.

To see this finally over, after almost a decade, for it to come to a close, it the end of longing for me. At least where my Nana is concerned.

She never placed on the papers of whom she wanted to have her cremains sent (family wise) when she filled out the paperwork to donate her body to University of Nevada, Reno.

It looked like the Medical School had her for just under a year. The signature date for cremation was 4-4-2003, which placed it at almost nine months after her date of death.

Holding Nana in my arms, after all of these years was bitter-sweet for me. I wish it was her in the flesh. Even just for a moment, to REALLY hold her, hug on her and tell her how much I love her still...Even though we had our battles as she helped raise me after my mom died. It was more of a generational battle than anything.

At least she is home, with her family, where she belongs. No longer is she encased within a Nitch for those that have gone unclaimed. To them she was 'just a number'. To me, and to my dad, she is much more than that. And now, her death has come full circle.

In fact, there is now a little running joke that was started by one of Scott's Aunts. She said that she bets that Nana got to go to more places in death, than she did in life. She's right! Nana really got around in life. But she REALLY got around in death.

Friday, June 18, 2010

The Life And Limitations Of A Corneal Graft Recipient

Over on my profile page at Facebook, a friend of mine had some questions about my Corneal Transplant that I had done in October of last year. I'm almost eight months post-transplant. Barring a few complications, so far, I'm doing quite well.

My friend's father had passed away a while back, and she had his corneas donated. They went to two different individuals. Thanks to her gift of her father's corneas, two more people are able to see the world around them.

There is sadly not as much conversation, education and awareness, as well as support for Corneal Grafting Transplants. We seem to be on the back burner. Mainly because to many it's "just an eye" and it's "just tissue". But the reality is...it is SO MUCH more than that!

Corneas are literally the windows to the world around us. Without corneas, you would not be able to see. AT ALL! Nor can you protect your eyes from MOST infections. Especially those that are air-borne caused.

Like many other things. Your eyes (and your corneas) get taken for granted. That is, until you lose the cornea, your sight, and almost the entire eye(s).

Here are the questions that she asks, and my answers.

Can you drive after you've had a cornea transplant ? No, not at this time. Due to complications of tight stitching and an ever-more developing Cataract, I am Legally Blind and would not be able to see things clearly from the left side or from my peripheral vision, which is still limited as well.

What about contact sports, swimming, flying etc? I can now just go back in to the water, but must be careful doing so. Contact sports are still a no-no. Flying, I don't know of yet either. I'm hoping to be allowed to get on roller coasters this summer with my kids at King's Dominion. Should know today, being I have a two-month checkup this afternoon.

Can the pressure from those cause damage to the transplant ? Ocular pressure certainly can harm the transplant. This is why it is checked at every visit. And for the first six weeks post-transplant, I wasn't allowed to bend at the waist, pick up objects (even my child) if they were over a specified weight, and even sex was banned.

Also, for the first week, I was not allowed to take a regular shower or wash my hair. I wasn't allowed to use face wash for the first month. I didn't color my hair again until like four months after surgery.

Just the other weekend, I got in to the pool. Before then, that was a no-no due to the chemicals used.

We (Corneal Graft patients) are placed on the ocular version of Prednisone. The side effects remain within the eye region, instead of having overall systemic effects.

I'm pretty sure I have some nerve damage in the way of nerve sensitivity. Now extreme heat (over 350 from an oven) and extreme cold (like from a freezer) either gives me a sharp pain or a "searing" feeling. I noticed those the first time I got to cook again, and when I opened a freezer section door at the store. And it's been like that ever since.

If anyone has ANY question in regards to Corneal Transplantation, or Donation, please feel free to ask away. Also, if you have yet to become a registered Organ/Tissue/Eye/Bone Donor, please click HERE and become a HERO.

Saturday, June 5, 2010

Organ/Tissue Donation....Distorting the MYTHS. Stating the FACTS.

Organ Donation. It is one of the most selfless, heroic acts a person can do for their fellow man. It gives another person (or a number of people) a new lease on life. A second chance that would not have come otherwise.

Since it's founding and inception, Organ, Tissue, and Eye Donation have made great strides, and had come a long way where medical technology is concerned.

Too bad public education and awareness have neither made the same wonderful strides since that time. There are so many myths, half truths and all-out lies when it comes to the topic of Organ/Tissue/Eye Donation. Some are classics that you have heard so many times, it's like second nature and doesn't even phase you when you hear the words blurted out unexpectedly.

The number one myth/lie I tend to hear the most is... "If I have an accident or other tragic medical emergency, and I am a Registered Organ Donor, then the EMS and the Emergency Department/hospital will NOT do EVERYTHING in their power to save my life, so that they can get my organs".

How very, VERY untrue that this statement is. All medical professionals are to do EVERYTHING in their means and within their power to save lives. No matter if the patient is an organ donor, or not. 

Another is.. "They might take my 'parts' when I am still legally alive, but look like I am dead".

Yet, this is another false statement. The Transplant Coordination Team must do various, and rigorous tests, including several EEG's, eye dilation test, and nerve sensation testing. After all of those are completed (multiple times) and each time nothing changes with negative results for EVERY time, then the patient is declared BRAIN DEAD (which is a legal form of death), and also their only means of having a heartbeat and breathing lungs is via the ventilator.

There were comments on a Fan Page I belong in regards to the possibility of New York mandating an "Opt-Out" Organ Donation System, where you are of "presumed consent to donate", unless you sign a paper/check a box for your State-issued Driver's License or ID that you wish to NOT be an Organ Donor. Basically, it is donation in reverse. Instead of VOLUNTARILY giving your organs, you will be PRESUMED to be a donor, unless you say otherwise.

Some of the comments were either of a selfish nature, or of not enough self-education in to the ins and outs of donating.

There are some people that don't want to donate being that they would only want to have their "parts" go to 'good people', not "killers, rapists" and others deemed less fitting of society.

There was one comment where an ADULT female would only donate (including her heart) ONLY to children. Sadly to say though, an adult (for the most part) cannot donate their organs to a child. Especially the heart and the lungs.

The only adult organs that are able to be cross-matched with children (TO MY KNOWLEDGE) is heart valves, and the liver (that can be cut in to 7 or 8 pieces and will regenerate to full size in the host body), skin, and the corneas (window of the eye).

Otherwise, there is no feasible ability to transplant adult organs in to children. Not unless the recipient's chest wall, kidney areas are of a compatible size of their donors.

In all real honesty, the last two excuses/explanations I gave as to why people wish to NOT donate their organs after their death are the two most selfish. Yes, children (especially infants and other small children) are at the greatest need of transplants. And they have the highest rate of donor shortage. But I do NOT fault the parents of deceased children. It is hard enough to lose your child, only to have to make a DRASTIC decision like that, at such a critical, emotional and bereaved time such as that.

But unlike the latter, I don't see where, in my mind and personal opinion, that there is a valid excuse to NOT donate (other than for religious practice/belief reasons). Especially when you put a "price" on donating. Such as stipulating that you only want a "good person or people" to have your organs. Or that as an adult only wants to give to children, which will make what you CAN give, very little.

Speaking of "setting a price" on Organ Donation. That is another misconception I caught on that Fan Page board. Some one (who rides motorcycles) said that he wouldn't want to donate, being that the DONOR family gets dumped with the cost of procurement, transporting of the organs and tissues, and for the RECIPIENT's  surger(ies).

Again, a FALSE statement/myth/accusation. Nothing, and I mean *NOTHING* is charged to the Donor or their family for *any* part of the Transplant process. That all befalls to the RECIPIENT. Believe me, I know. Just for my cornea (not including harvesting, transportation, or transplantation) cost me $3,000.00. ME!....Not my donor or their family. It is against FEDERAL law to charge a single dime to the Donor or their loved ones being a donor or for the donation process.

So, I hope that for those of you that are still deciding to become an Organ/Tissue Donor, or for those of you that never really knew much about the process have read this and have taken something away (positive) about the TRUTH of being a Donor.

I truly believe that if more people were to self-educate (through reputable organizations, websites and through personal experiences of recipients) of exactly how Donation works, there would be MILLIONS more people willing to sign up to be a HERO.

Saturday, May 1, 2010

My First Time.

Some say, when you have your first time, it can be really scary. You don't know what to expect, how to act or react. Or even what to feel at that very moment in time.

There are many firsts in our lives. First boyfriend or girlfriend. First dates and kisses. First time having sex. And then there is another first. One that thousands in the United States, and millions world wide get to have. Believe me, it is a first that no one wants to experience.

The loss of someone that for some people, they don't really even know on a "personal" level. But the shock, hurt, fear, and pain is still the same. Because in my exclusive club, when one hurts, we all hurt. When one rejoices, we all rejoice.

Sadly, there is no rejoicing for us in the Transplant Community in our Facebook tight-knit group, TEC. For one of our own is watching his wife dying before his very eyes. And there is NOTHING now that can be done for her.

She was in the process of testing to receive a Liver Transplant. She was even transferred to another hospital to start rehabilitation. But no sooner they got her there, she had to go back to her regular hospital and be placed in ICU. Sadly, she is now in Liver and Renal Failure. Her Kidneys have also basically shut down. Now, this vibrant, "young" woman is on full life support and around-the-clock dialysis.

Her family is coming in to say their good-bye's and at this point she is comfortable. By Monday, she will be taken off of life support and let nature take it's course, unless her heart stops before then.

This is a first for me. It is a stark, let alone grim reality of being in the Transplant World. None of us, be it Live Donors, Donor Families, or Recipients, I think honestly "get it" until something like this happens. We are in a "La La Land" of sorts. We all know that some get the call and are lucky. Some sadly don't. But until it REALLY "hits home" and happens to one of your own (so to speak), you can't honestly get a grasp on the severity of the realities of being in this (be it unwanted) exclusive club, where ALL ages are welcome, nor are they turned away. Transplantation has no age limits. Nor does Organ Failure.

Today, I await word on a friend's wife. He held out so much hope, gave her SO much love and devotion and was there for her from beginning to end, never wavering. He was giving positivity and hope to fellow new caregivers, even as he has had been getting his own heart shattering through seeing that there was nothing he could do but support and be there for the love of his life. And he is at this moment, by her side. Showing her his undying love, giving all the support he can as her soul-mate and just waiting for the end to sadly come.

We, his friends, have been loving them, supporting them and have hoped for the best. But sadly, the best came too late in the game. And for one woman, her journey through the Transplant Experience is almost over. Help was coming too late.

This "first" is something I will carry with me for years to come. And it's a "first" I knew would come along in my life. I just didn't think I would be blind sided with it this soon after becoming a Recipient myself. But I thank it for coming like it did. Why? Because now I can see the TRUE realities of the Transplant Community/World. It's not all a bed of sunshine, puppies and rainbows.

There is also darkness, heart break, sadness and death. In  this "club", lives are at stake. We have to depend on another person, be it that they are alive or have died, to keep US alive, seeing and going on with our own lives. And to be here for our loved ones. That's a hard pill to have to swallow.

Some one had to DIE to give me my sight back. Some people depended on someone's death to be their second chance for a new heart or a new set of lungs. It's not easy knowing this fact. In some ways, some of us (myself included) felt like we "took" or "stolen" from our donors, in a selfish manner. But that is NOT the case.

Our donors gave of themselves to help those that are in need of a second chance at living their lives and being with their loved ones. Without them, we either would not be able to see, walk or even be alive ourselves.

There is so much more of a Demand, than there is a Supply for people in need of a Transplant. Be it a heart, a kidney, lungs, cornea, skin, and many other organs, tissues and even blood. Please, if you have yet to do so, SIGN UP to be an Organ/Eye/Tissue Donor. Be a HERO and pay it forward. You never know when YOU may depend on someone else for a second chance for the Gift of Life.

Thursday, April 1, 2010

April is for more than Easter. It's to Give Life, Give Hope....

Life. What a precious thing to have, isn't it? Most of us take it and all of it's gifts for granted. That is until something major happens and it makes you take a better look at that proverbial big picture.

That is how it is for over 100,000 people in the United States of America alone. Add in people all over the world, and you are looking at MILLIONS of men, women and children. Holding on to every single day as if it really is their last. Hoping for that one second chance.

Waiting for someone to give of themselves. Waiting....for a new organ, tissue, bone, or bone marrow.

Some will sadly die waiting for their turn. Some have been waiting only a few weeks. Some, a few months. And some have been forced to wait for YEARS to get "the call" to receive the Gift of Life.

During the entire month of April, those of us that have been touched by Organ/Tissue/Bone/Marrow Donation are celebrating Organ, Tissue Donation Awareness Month.

People that have been are a Recipient, a Living Donor, is a Donor Family, or a friend of someone who donated or received an organ/tissue/bone/marrow are banding together to spread the awareness of the need GLOBALLY, all around the world for people to SIGN UP 2 SAVE LIVES with their local Organ/Tissue Donation center.

Be it the Department of Motor Vehicles (DMV), on a website such as www.donatelife.net/CommitToDonation, or Google-ing for International Organ/Tissue Donation Registration websites.

When you sign up to be an Organ/Tissue Donor, you are saying that you are willing to freely give someone else, after your death, a second chance to live on.

For me, it was a Cornea for my eye. That is the "outside window" that protects your inner eye from injury and enviromental infections that could otherwise sneak in directly and attack the eye its self.

Without my Donor's gift of sight, I would be COMPLETELY blind in my left eye. As a Stay-At-Home-Mom that was NOT an option. I wanted to see with BOTH eyes, my three young children grow, be able to keep BOTH eyes on them, be able to SAFELY cross a busy street and have more of my independence back.

If you sign up to be a Donor, you are a HERO! To not only the Recipient. But, to their family and their loved ones. We ♥ our Donors and their families EVERY day. They are NEVER far from our thoughts, hearts, and appreciation.

Please, take a few minutes out of your time today to sign up to be an Organ/Tissue Donor. It's free, quick, and simple. Let someone have a full life and a second chance.

http://www.donatelife.net/    http://www.organdonor.gov/     http://www.unos.org/














    


















Saturday, March 13, 2010

Copy of letter to DONATE LIFE AMERICA re: my story of being a Cornea Recipient

For much of my adult life, I have been battling what I thought to be "teen acne". That was until the morning of October 21,2009. That's when I perforated my Cornea after poking it with my finger knuckle as I scratched an itch on my eyebrow, and my finger slipped.

On October 24th, I was sent to Duke University Medical Center and learned that I in fact had the skin condition, Rosacea. This is called Ocular Rosacea. It was in my eyes as well. And as a result, the Cornea thinned with each flare-up.

On October 29th, I was rushed back to Duke for an emergency Corneal Transplant. The Gluing procedure that was used to wait out the infection didn't work.

Thanks to my Donor, their courageous gift, and his/her family, I was able to regain my sight. At least a tiny bit. It's going to take a great amount of time (about a year or so) for all of my vision to return.

But this married, Stay-At-Home Mom of three children (ages 10 years to 5 years) is forever grateful to the doctors, her Donor, Donor Family and the North Carolina Eye Bank for the gift of sight. Without them and my family's support, I very well could be blind for the rest of my life (or even without an actual eye).

That Cornea Donation saved my Cornea, the eye it's self, and my life as I've come to "know" it.

Please give to others. Be a Donor and give someone the chance at a better, healthier, and happier life.

I myself am an Organ/Tissue/Eye Donor. If you are going to "take", it's always a good thing to also "give".

Melissa, State of Virginia

Friday, March 12, 2010

Come, join us at... The Transplant Experience Community (TEC) group on Facebook...

It's a safe haven. It is a place of support and understanding.

Thanks to Rex and Linda Maus, those of us that are facing a transplant, have had a transplant, were a Living Donor, or we are a family member of a Donor, have a place to run to. To call home.

That place is The Transplant Experience Community (TEC) group over on Facebook.

We have all various types of groups of transplant members there. Liver. Kidney. Bone. Heart. Lung. And even Cornea.

There are forum threads in the discussions area for each transplant group. There is a "Prayer Corner". We also provide a place to vent about the after affects of the surgeries.

As not only a member of this wonderful community....no, FAMILY, but as an Administrator in the group as well, I can personally say that I have never felt so close to "strangers" over a computer as I do with my fellow members in TEC.

We laugh together. We cry together. We share our hopes, our dreams, and our fears with one another. There is real love in the group. It illuminates all around within the group's walls.

If you or a loved one, be it a sister, brother, mother or father, a friend or co-worker is in need of a transplant, has had a transplant, or you wish to know more about Organ/Tissue Donation, please feel free to join us at The Transplant Experience Community. We are waiting for you with open and accepting arms.

The Transplant Experience TEC

Monday, February 8, 2010

The Transplant Experience Community (TEC) group on Facebook...

It's a safe haven. It is a place of support and understanding.

Thanks to Rex and Linda Maus, those of us that are facing a transplant, have had a transplant, were a Living Donor, or we are a family member of a Donor, have a place to run to. To call home.

That place is The Transplant Experience Community (TEC) group over on Facebook.

We have all various types of groups of transplant members there. Liver. Kidney. Bone. Heart. Lung. And even Cornea.

There are forum threads in the discussions area for each transplant group. There is a "Prayer Corner". We also provide a place to vent about the after affects of the surgeries.

As not only a member of this wonderful community....no, FAMILY, but as an Administrator in the group as well, I can personally say that I have never felt so close to "strangers" over a computer as I do with my fellow members in TEC.

We laugh together. We cry together. We share our hopes, our dreams, and our fears with one another. There is real love in the group. It illuminates all around within the group's walls.

If you or a loved one, be it a sister, brother, mother or father, a friend or co-worker is in need of a transplant, has had a transplant, or you wish to know more about Organ/Tissue Donation, please feel free to join us at The Transplant Experience Community. We are waiting for you with open and accepting arms.

The Transplant Experience TEC
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