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Showing posts with label transplants. Show all posts
Showing posts with label transplants. Show all posts

Friday, January 27, 2012

Bloggers I Love, Discovered & want To Get Some Exposure.

I have been blogging for at least the last three years. Maybe even more than that. But I'm not one for keeping count.

Over these last few years, I have discovered some really neat blogs, and wonderfully crafted Bloggers. Some armature. Some went "pro". And some fall right in between the middle.

I've followed or read ALL kinds of topics from bloggers. From being a stay-home-parent, all the way to giveaways, and in between, some things like topics of the Paranormal, poetry, and fan fiction.

Today, I wish to bring to you (yes including a couple of my other blog pages, too) some Bloggers who spin their crafty words on to their pages from ALL types of blogging topics. Please indeed do take some time and check them out.


A Tall Drink of Sweet Tea (A little bit of everything)

Holly's House...not a perfect mom's blog... (That name should say it all! lol... And I thought my kids were nutso. WARNED! Explicit language)

Narragansett No. 7 (A pro writer, giving a funny look in to the everyday life of being a parent... WARNED! Explicit language)

Another Cookie, Please (What started as a chronicle of her mother's battle with illness turned in to a page filled with all kinds of tidbits and her no-nonsense take of the world around her.)

Living for the Dream~Teri Drost PhotoArt (A BRAND NEW blog page! Features wonderfully captivating and beautiful photography art. From nature to reptiles, Terii snaps them all!)

The Blindo Diaries (Advice for those fighting and/or living with blindness. From someone who's there.)

Parga's Junkyard (Giveaways, coupons, shopping tips, reviews, recipes)

Now, being the gracious Hostess that I am, and because my Mama taught me better, I have saved MY links for last. I urge you to check these out, also. I have so many pages to write in because I wanted to keep my topics (for the most part) organized and more readily available to my readers and my potential readers.

Poetic Thoughts (Blog of poems that either are originals by me, or credited to famous authors.)

Through A Looking Glass (Educational. My life as a person that had a Corneal Transplant)

ParanorMel (All about the subject of the Paranormal. Primarily ghosts, hauntings, and my own experiences, and those of my family.)

The "Mental"-ist Mom (Talking about my life as a parent of a child deemed disabled by his many mental disorders. I also talk about the Disability Community in general, as well.)

As you can see from this list, there is indeed SOMETHING for not just one or two types of interest groups. But there is something for EVERYONE to (hopefully) enjoy. And I hope that you have found something that you may have been looking for.

Depending on the popularity of this post, comments/reactions to it and if there are any requests, I may do another one of these in the future. And hopefully, with a MUCH longer list of blog links.

Sunday, April 3, 2011

Distorting the FACTS from the MYTHS About Organ/Tissue/Eye Donation

The following are the Myths and the Facts about being or becoming an Organ/Tissue/Eye Donor.

Information (copy/pasted) is provided by the Mayo Clinic.

Myth: If I agree to donate my organs, the hospital staff won't work as hard to save my life.

Fact: When you go to the hospital for treatment, doctors focus on saving your life — not somebody else's. You'll be seen by a doctor whose specialty most closely matches your particular emergency. The doctor in charge of your care has nothing to do with transplantation.
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Myth: Maybe I won't really be dead when they sign my death certificate.

Fact: Although it's a popular topic in the tabloids, in reality, people don't start to wiggle their toes after they're declared dead. In fact, people who have agreed to organ donation are given more tests (at no charge to their families) to determine that they're truly dead than are those who haven't agreed to organ donation.
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Myth: Organ donation is against my religion.

Fact: Organ donation is consistent with the beliefs of most religions. This includes Catholicism, Protestantism, Islam and most branches of Judaism. If you're unsure of or uncomfortable with your faith's position on donation, ask a member of your clergy. Another option is to check the federal Web site OrganDonor.gov, which provides religious views on organ donation and transplantation by denomination.
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Myth: I'm under age 18. I'm too young to make this decision.

Fact: That's true, in a legal sense. But your parents can authorize this decision. You can express to your parents your wish to donate, and your parents can give their consent knowing that it's what you wanted. Children, too, are in need of organ transplants, and they usually need organs smaller than those an adult can provide.
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Myth: An open-casket funeral isn't an option for people who have donated organs or tissues.

Fact: Organ and tissue donation doesn't interfere with having an open-casket funeral. The donor's body is clothed for burial, so there are no visible signs of organ or tissue donation. For bone donation, a rod is inserted where bone is removed. With skin donation, a very thin layer of skin similar to a sunburn peel is taken from the donor's back. Because the donor is clothed and lying on his or her back in the casket, no one can see any difference.
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Myth: I'm too old to donate. Nobody would want my organs.

Fact: There's no defined cutoff age for donating organs. Organs have been successfully transplanted from donors in their 70s and 80s. The decision to use your organs is based on strict medical criteria, not age. Don't disqualify yourself prematurely. Let the doctors decide at your time of death whether your organs and tissues are suitable for transplantation.
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Myth: I'm not in the best of health. Nobody would want my organs or tissues.

Fact: Very few medical conditions automatically disqualify you from donating organs. The decision to use an organ is based on strict medical criteria. It may turn out that certain organs are not suitable for transplantation, but other organs and tissues may be fine. Don't disqualify yourself prematurely. Only medical professionals at the time of your death can determine whether your organs are suitable for transplantation.
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Myth: I'd like to donate one of my kidneys now, but I wouldn't be allowed to do that unless one of my family members is in need.

Fact: While that used to be the case, it isn't any longer. Whether it's a distant family member, friend or complete stranger you want to help, you can donate a kidney through certain transplant centers. If you decide to become a living donor, you will undergo extensive questioning to ensure that you are aware of the risks and that your decision to donate isn't based on financial gain. You will also undergo testing to determine if your kidneys are in good shape and whether you can live a healthy life with just one kidney.
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Myth: Rich and famous people go to the top of the list when they need a donor organ.

Fact: The rich and famous aren't given priority when it comes to allocating organs. It may seem that way because of the amount of publicity generated when celebrities receive a transplant, but they are treated no differently from anyone else. In fact, the United Network for Organ Sharing (UNOS), the organization responsible for maintaining the national organ transplant network, subjects all celebrity transplants to an internal audit to make sure the organ allocation was appropriate.
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Myth: My family will be charged if I donate my organs.

Fact: The organ donor's family is never charged for donating. The family is charged for the cost of all final efforts to save your life, and those costs are sometimes misinterpreted as costs related to organ donation. Costs for organ removal go to the transplant recipient.

Wednesday, February 9, 2011

I'm "Pouring Out My Heart" as I am "Cleaning Out My Closet".

I decided to "double dip" today, which is really a rare thing. Today, this post will serve as both a participant in Shell's



..and For The Love Of Blog's (Vic's)

Photobucket

As most of my readers know, I required a Corneal Transplant back in October of 2009. I had a bad infection invade the eye its self, then it also eroded the cornea. But I perforated the entire cornea when I accidentally poked myself in the eye.

While I have fairly good eyesight (colors, some shape, light) I still have problems. One being a cataract that will eventually need removal. I still have eight of sixteen stithces left to go.

I have my good days. But lately, I have had a rough go. I don't often complain on here or on Facebook or Twitter. I don't want to sound like a "whiner".

And most people, if they don't understand that a transplant is NOT a "cure all" think that the recipient must be ALWAYS happy and feel "lucky".

In all honesty, lately I've had some trouble where infection is TRYING to attack again. Not bad, but in an annoying way. I am working on getting it calmed as we speak.Add in sinus trouble also making my eye a bit unnerved and it's an all out "party"

Sometimes, I wish that they did take the eye. Then I'd have no more drops, no more stitches needing to removed. No cataract to be taken out. No mounting doctor bills for "after care" that constantly come at me. And no chance of needing a SECOND transplant later on down the road.

Is it selfish and ungrateful of me to think and feel this way? Maybe. But I also feel that my children have been through enough with their mother having one set back after another with her eye in one way or another.

Yes, I am so very thankful to my donor and their family. Without their gift, I would have no sight at all. But also my children and I are paying a price. As is my husband. Not just monetarily.

Organ and tissue transplants are not the cure all to the problem with that organ or tissue. In fact, you go from having one set of problems, to a new kind of set. Mainly dealing with the chance of rejection. It CAN happne a day later or many years down the road. And we live in the thought of "is this the day that it all goes downhill and we have to start over again?". It's not a life I wish on anyone. Even for "just an eye".

I'm angry. At my skin condition that invaded my eye. I'm angry at myself for not getting that under control sooner. I'm angry that my body turned against me. I'm angry that another family had to suffer a loss. I'm angry that it took someone to die for me to be able to see with both of my eyes.

While I may smile and "look" or even "sound" happy on the outside, inside, especially right now, I'm screaming and seething. Because right now, I feel that I have lost a battle (again) that I have fought hard to win and overcome for the last year and a half.

Friday, January 7, 2011

Death Panels...Since when is one's life "not budgetable"?

Arizona has a Governor without a heart or a soul. Her state's budget cuts are not only "saving" money, but are also COSTING lives.

Now, two people are dead. Thanks to the budget cuts and the insurance's refusal (due to said cuts) to pay for much-needed transplants.

There's now a list of people in the state of Arizona whom will surely die, being that their assurance of insurance has been cut off because the insurer will not "be able" to pay for the transplants.

Including the one this past week who was needing a kidney transplant.

Yes, the insurance I am speaking of is Government-funded Medicaid. The state's funds for the insurance that helps those that are low-income, too disabled to work or meet other criteria for the (supplemental) insurance will be cut by $1.2 million.

Luckily though, the citizens of Arizona have Senate Minority Leader-Elect David Schapira (Democrat) in their corner. And he is asking to have *emergency* restoration of the Medicaid funds to be put in to place. But only for certain types of transplants.

Thus far, 98 patients are on that list.

Patient Mark Price died in November, as he was desperately awaiting a bone marrow transplant.

Read the full story at... CNN.com

As a transplant recipient myself, to see these kinds of cuts made at the expense of human life, is utterly deplorable. Shame on the state of Arizona, and it's idiot Governor, Janet Brewer.

Rest assured though, that in the event that herself or one of family members or close friends (who were on Medicaid, thanks to job loss or lower income status) suddenly required a transplant of some type, she would be fighting tooth and nail to get their insurance to pay for it.

But hey, it's no one special or important (to the dumb hag called 'Governor') so she feels that she can go to lay her head down at night without the guilt of knowing that she (literally) signed almost one hundred of her citizen's death warrants by her actions of slashing the access to their medical insurance, and to much-needed medical care to stay alive.

Sure, it was "just an eye" to most people. But saving my sight, as well as my entire eye was of utmost importance to me as a mother of three children who are all still under the age of twelve.

If my insurance wasn't there to help cover the cost of my (**$23,000.00**) surgery to have my cornea replaced with a cadaver's cornea, then I would not have my sight, let alone the eye its self. And being a mother, it would have hindered (somewhat) my being the mother I am to my children.

What kind of person wishes to slash funding as to let others be there with their children and grandchildren? A thoughtless Government Official such as Governor Janet Brewer, is who! And the scary part in all of this? If one state does something like this to "save the state money", then most often times, even more states follow and institute these cuts as well.

And that's a scary thought in its self! It will go from just under a hundred, to hundreds, then to thousands. Then, quite possibly the "movement" could cost MILLIONS of lives here in America.

Is this really what our country's Government was built to be all about? Money over it's people.

The more I look, the more I view it in this manner. And it frightens me more and more a bit each and every day, that our children and grandchildren's lives will be placed on the front lines as a means to save a few extra bucks for the Government Officials to pocket.

The money NEEDS to be put back in place. At least some it it, anyways. And for the most needful of transplants (heart, lung, kidney). And Arizona's guidelines on insuring transplants needs to be overhauled as well. No one's life is above another's. Or at least it shouldn't be.

I can understand (at this time) that they cannot cover ALL types of transplants. But give those with the biggest fights ahead, the biggest chance at living.

Is this really too much to ask, Gov. Janet Brewer?

Saturday, October 30, 2010

One Year and Counting

Yesterday was filled with a lot of laughter, smiles and fun. But deep down, I knew exactly what the day was all about. Some of it, sad. While, for the most part, good.

I'd spent the entire school day in my youngest daughter's Kindergarten class. We carved real pumpkins in "teams". Then we did a ton of different crafts. Including my 'Jack-O-Lantern Jug' that they have an option to use as a candy collection jug for Trick-Or-Treating.

After trying to think of something to do to commemorate the special meaning of October 29th as being the Transplant Anniversary since having my new Cornea placed in, helping me to once more see, and even be able to keep the whole eye that at this time last year was ravaged with infection to the point is nearly impossible to save it, I think I found my way of honoring my Donor, their family and the significance of the day.

I had fun. I smiled. I played with the wonderful children I help every week in the classroom. I even danced with the kids at the Halloween Dance that was put on for them after school. I lived life as I always have. As a survivor of the hurdles I have had to face, and as the mother I was before my sight in the left eye was robbed, thanks to infection and an accident.

As I sit here and think back about the past week, I honestly cannot think of a better way to thank and honor such a gift, or the Donor that gave of themselves. To live my life. Be happy. To be the mother that I was meant to be to my children. To be the wife I have striven to be for my husband for the past eight years of our marriage. To be the friend that I have always been or have to tried to have been to others.

My donor gave me what was robbed of me in a matter of seconds. Even though apparently, the damage was already severely done over the prior months before. But it took just one accidental poke with my own knuckle to complete what the infection set out to do. To take away my sight completely from my left eye.

Almost a month later, my Donor gave me their cornea, thanks to their loving gift at the end of their life, and to sheer luck that one was readily available to fit my needs.

At first, it killed me inside to know that I had to have someone die to let me live my life as I have always known. I had "Survivor's Guilt". Especially when Thanksgiving and Christmas came around. I knew that as I sat down to dinner and opening gifts, another family was sitting around grieving and wishing that their loved one was still here to enjoy life and the holidays with.

Now that the year has come along, and I am pretty much back to normal like before all of this had happened, I no longer try to think about things in a "sad way". I know deep within my heart, my Donor is happy with my getting back on with life and enjoying being a wife and a mother.

They gave me my life back. And for that, I will FOREVER be grateful. To them, and to their family. And I have realized, at least for me personally, the best way to honor them, not just on October 29th, but EVERY single day of the year, is to just live my life to the fullest capacity, smile as much as I can, and know that THEY TO know just how thankful that I am of the gift that they bravely and heroically gave to me.

Monday, September 27, 2010

So Many Thoughts Come to Mind...Ponderings On a Rainy Day.

In one month and two days from today, it will be a milestone. And a lot of different meanings.

For one, my childhood friend, Lisa's birthday is on October 29th. We just recently reconnected, thanks to FaceBook, after almost 25 years of dropping off the earth to one another. Then, soon followed by her three sisters, Neva, Dana and Rena.

Then, add in the fact that it will be 21 years since my mother's passing. Over the years it has gotten much better to take in and deal with. I know she will always be with me in my heart and in my memories (what few I have left of her and our time together).

The biggest milestone to come on October 29th though is...

It will be my one-year anniversary since my Cornea Transplant. While I'm happy to have the sight that I DO have in it now, compared to before the surgery (and the fact that I have a cornea), it will also be a day of mourning.

Yes, we recipients DO mourn the passing of those which have given us our second chances. We never (in most cases) were able to meet them in life. And a rare few of us get to meet the families that are mourning the loss of their loved one that donated to us. But we are very thankful and grateful, none the less. And it hurts us to know that another family is out there, somewhere, hurting and are not able to have the time with their family any longer, as we recipients share in the joys, trials and tribulations of our families.

It's on days like this, where it's damp, chilly and rainy, that I sit and wonder. What if my mother were still alive? How would she have felt of my moving across to the other side of the states? How would she think of my husband? What nicknames would she have given her grandchildren?...Would I have still had that stupid trache until I turned 18?

I also wonder who my donor was. What is their gender? How old were they? What were their likes and dislikes? Was their family life filled with love and laughter?

So many thoughts to ponder as I sit here, sipping my coffee and listening to the stillness of the house, as the rain beats down and the cars are passing by on slick roads.
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